Bo vs BAC

2009-11-11T10:33:00.003-05:00

Hello to All - Just a quick update. We did make it up to Duke yesterday, barely. It was decided Bo wasn't feeling well enough to start any new chemo. So our plan for attack right now is to focus on his nausea and strength. They would like a local nurse to visit him at the house more frequently and to keep better tabs on him. Hopefully this will start soon, the sooner she comes the better we can adjust his meds or change them to help him feel better and actually keep some food in his system. Depending on how quickly we can handle this, then we go from there.
Many of you ask how you can help. Just be there for Bo. It is quite lonely feeling sick all the time. He cannot answer his phone all the time, but he does a great job responding back to emails. I know he would love to hear from everyone to help pass the time until he feels better. Also mark your calendars for February 27, 2010 for another year of Beating the Odds at Raceworld USA in Cornelius, NC. We are looking for silent auction items, sponsors and helpers to sell tickets!
Love to All
Christi, Bo and Addi

2009-11-09T16:20:00.002-05:00

Hello to All - Oh I so wished I could tell you all that Bo was doing better (since I did say no post means no news is good news, but this time we are stable) He still isn't eating very much and is extremely weak. We keep trying, so we try some more.
With that being said, we are heading up to Duke tomorrow. After all the tests ran when Bo was in the hospital they do feel like a change is necessary in Bo's treatment plan. There is a slight change in his liver with the cancer, no where near where it was in July when they discovered it, but enough to warrant a different chemo. We have all decided this might be the best anyway, since we are unsure of what is making Bo sick, maybe the Altima maybe not, but we will do whatever we can to make him feel better. I just pray and pray that Bo will find the strength to travel to Duke tomorrow so the doctor can help him feel better. When you are feeling bad I am sure that last thing you want to do is drive and get chemo...
Bo's doctors have been amazing again and checking on us and trying to make sure Bo knows they want to exhaust every option out there for him and try to discover what is causing him not to feel well, I pray we can do it soon. Chicken broth can only get you along for so long.
I will let you know if we travel tomorrow. Please make sure to tell your family how much you love them and say a quick prayer tonight for everyone's health and happiness. We will find a way through this, we are just riding the roller coaster.
Love to All
Christi, Bo and Addi

2009-11-03T09:42:00.004-05:00

No Duke today, Bo is resting and trying to feel better. J - I will check with doctors about his immune levels. They have been watching, but one more test cannot hurt right?

Here a some Halloween Pictures of our Alice and some friends trick or treating at the office...

2009-11-02T11:41:00.002-05:00

So Sorry this weekend has been a blur and well, the blog got left in the dust. Bo got the okay to come home from the hospital on Friday. So if you were on I-85, that was me leaving you in the dust...I did set cruise control and tried to stay only 6 over....hehehe
With that being said, Bo's MRI Brain scan came back the same...he still has those 2 previous spots and they remain unchanged, so that is good news. Bad news is we still do not know what the problem is. They released Bo with him feeling a little better, but not himself. (I think he decided he had enough and wanted to try and make trick or treating.)
He is home, still in bed not feeling well, but eating a little and getting more fluids in him. I think the plan right now is to go back up tomorrow, hopefully, talk with Dr. Crawford and keep trying to figure out what might be the problem. I have contacted Dr. Palmer already and he had some tests ran while Bo was in the hospital and Bo's transplant meds appear to be fine, so hopefully they are not causing the problem, but maybe. He is willing to try anything, tweak a little, and see if that will help.
Thanks for the prayers and I will get pictures of Addi up soon, aka Alice in Wonderland and let you know when the next appointment will be and what we will do from there.
Thanks for all the love, support and patience.
Love to all
Christi, Bo - in bed not feeling well and Addi, bouncing all the walls with candy - we limit to one a day, but I think she stashed some somewhere in the house because her energy is 10 fold - that or I am getting older (never) Or maybe because Christmas is everywhere!

2009-10-28T21:33:00.002-04:00

Hello to All - Today was fairly uneventful. More fluids, more tests and tonight they took Bo for a Brain MRI. Bo spent most of the day with his sister Caroline and trying to keep the doctors and nurses from coming in so he can get some rest. They want to run their tests, figure out what the problem is and kick him out, he just wants to feel better without being poked 500 times...to meet in the middle, is that possible?
We will get some results hopefully tomorrow and maybe find a solution. Please keep praying that Bo will find a way to keep some food in his stomach and that nothing new or old shows up on the Brain MRI.
Love to All
Christi, Bo and Addi
See I told you it isn't good when we post frequently...

2009-10-27T21:04:00.002-04:00

Hello again - so quickly I know. Well today didn't go as uneventful as we wanted. Bo was admitted into the hospital today to hopefully just treat dehydration and nausea. They immediately hooked him up to an IV at the clinics and then moved him to the hospital. They are only expecting him to be there for a couple days. They just really want to help him get over this hump of not feeling good.
With that being said, they couldn't get an IV in him yesterday to run the CT with contrast, they just performed a CT. From what they can tell, they do not feel that the cancer has changed. Once they pump him up with fluids, they will try to run the test again with contrast and make sure. They are also going to run a Brain MRI and check the infamous "spots" on his brain.
We all are hoping and pushing towards that Bo just picked up with flu and hasn't been able to overcome it on his own. So let's keep praying for that and not anything any more exciting. I guess it is all in perspective when you are praying for a flu bug...
Love to All
Christi, Bo and Addi

2009-10-26T11:16:00.003-04:00

Hello to All - Christi here - Bo and I made a pack that we would update once a week, even if we have nothing to say, which for anyone that knows us, having nothing to say really never happens.
Today we head up to Duke for the infamous scans. (We meet with Dr. Crawford first thing tomorrow morning for the results - BIG Prayers tonight please) With that being said, I am nervous. Bo has been under the weather for a week now. He hasn't been able to keep anything down and that makes me nervous, because with cancer, losing weight is never a good option. It is possible, Bo got one of the many types of "flu" going around, but it is hard not to "go there" whenever he is feeling bad. So I am heading off the doctors and sending an email up ahead of time to let them know we are having stomach issues and we are not leaving until we find out what to do. Or at least get some medicine to help for the time being. So I worry, I am beginning to get more wrinkles than I can count!
Addi and I have been doing well staying away from the flu. The poor girl had her 4 year old check up last week and that made her out of sorts, but she is better and ready to trick or treat. I promise pictures of that soon.
Love to all and we should update later this week with the results.
Christi, Bo and Addi

2009-10-16T17:00:00.002-04:00

Just an FYI - This is from Bo!

I am really sorry to everyone that it has taken us so long to update the blog, plus the fact that Christi is always doing it and I have been silent. It was a real tough road back for me from the transplant. I went through a "foggy" period on a lot of drugs, and then there was the reinsertion part of getting back to work and life. I feel like I missed about a year and a half of stuff!

Christi, and I love her, has done a great job in keeping you guys up to date. As you know, I am having to do chemo again and it is really making me sick. However it is working so I can not complain too much. Work is really going well again, and I am even back traveling some with the next trip to Arizona coming up Monday.

Addi's Cure (www.addiscure.org) is doing well. Any help there is always appreciated.

The best thing I can say is that I am really trying to live life and make the most of the time I have left, however long that is. Addi and Christi are the most important things in the world to me, and it is imperative that I am with them. I also want to see all my friends and business associates too, so it is a hard juggling match. If I have not seen you lately, come see me!

Don't forget to hit me up on facebook as well. Bo Johnson is the name.

Thank you for all the support and prayers, they really work!

2009-09-29T16:02:00.002-04:00

So Sorry - Where in the world have we been...So much going on, so much has happened, but do know that no news means good news. First we hit the zoo and then the beach. Addi is so Bo. "Look Addi there is a monkey." "Great Mom, what's next." I had to make her and Bo watch the monkey for a minute and then she realized they swung from branch to branch, sort of cool to watch.
Then I am happy to say a couple Saturdays ago we had a little get together of our "transplant friends." I always forget that Bo doesn't know everyone as well as I do, due to the fact he was unconscious, but he is getting to know them. Joe and Marilyn, Bob, Brenda and Don and Sue. (Debbie was partying in Vegas, just kidding, she was in Vegas though) We had a great time and I think Bo and Don felt more normal sharing their frustrations with one another as this recovery process continues.
I am so Sad to say the next day Bo's Papa, Great Papa to Addi, passed away. He had been diagnosed with Colon Cancer, survived the surgery, thrived in the hospital, was released to the rehab center and then one night took a bad turn and passed away, Sept 20th around 8:00. He was an incredible man that lived and lived to his liking. We were truly blessed to know him. Bo loved him like no other and is dealing with his loss. Papa has always been there and Bo with a heavy heart feels this loss. We both believe though that Papa continued on for many years without his love, Rosie, it is time for them to be together. He will dearly missed.
Yesterday we visited Duke for a marathon of a day. First labs, then bronch (they took some biopsys and we will get those results in a week or so, keep your fingers crossed they didn't find any fungus or germs.) Then to Hematology, Blood Doctor, she recommended Bo we a compression sock in the leg that has a clot. At first Bo hated the idea, now he is just starting a new trend. Finally a visit with Susan to look at the labs and Bo is holding steady and strong, so off to more chemo. He is doing well today, just tired, but aren't we all.
We visit Duke next October 15 for transplant doctor and vocal cords again. But before that DISNEY here we COME!
Love to all
Christi, Bo and Addi

2009-09-02T21:42:00.004-04:00

Hello again - Not to much to report right now. Bo has the infamous head cold that is going around so he is pretty pitiful, I am freaked out anytime he gets anything respiratory. I just try to remind myself that he will get sick sometimes and we just need to watch the "color" of things. Maybe that is what is really freaking my out.
With that said, how about a few Addi stories. Today I told Addi that we needed to clean the house and that we were going to open the windows(by the way today was BEAUTIFUL.)
"Why are we opening the windows Mommy?"
"Well so the germs will fly outside of the house and hopefully that will help make Daddy feel better."
"But Mommy, what if the germs fly to heaven and make God sick."
"Well Addi, hmm, God knows to wash his hands a lot."
What do you say to that other than take the opportunity to drill into her head to wash her hands, with soap. School is starting soon you know.
Another Addi story is that fact she no longer says, "I love you." I know heartbreaking isn't it. But get this, she now says, "I promise." It almost makes it okay. When did she become a "cute" teenager. I thought I would have a couple more years before she dropped the "I love you". I guess we better watch out because in a month she will be Four.
Love to All or Addi says, I promise
Christi, Bo and Addi

2009-08-22T11:52:00.003-04:00

Hello to All - We hope you are enjoying your weekend. I think we plan on resting and relaxing as much as possible with a 3 year old...I do believe our car is on autopilot with the drive to Duke. We ended up going up the night before and we had Addi with us this time. We pretty much let her choose if she wants to come with us our not, and this time she did, well at least after she woke up from her nap and changed her mind.
Enough rambling. They perform an ultrasound on Bo's neck and both legs. This took about 1.5 hours to do, needless to say Addi and I went and played at the children's hospital. Visiting there helps to put everything into perspective and we are so blessed to have a healthy child.
The results came back that Bo does have blood clots. This isn't an uncommon problem when people are going through chemo, it just stinks to add another thing on Bo's plate. We never knew how fortunate we were with Bo cycle of chemos before, he didn't really have any of these complications, but with the transplant we are hitting a few more bumps. So Bo will now take twice a day injections of his medicine to thin his blood. At a minimum he will do this probably for 6 months, potentially for life. We are setting up an appointment with the coagulation doctors, chalk up another department we are visiting on the World O Bo and they will run the ship with these medicines. So this weekend we are resting, Bo is feeling a little yuck from chemo, so I might take Addi out of the house to swim, but always stay close by in case we are needed.
Thanks for the prayers and hopefully soon we will get all this "fun" under control. We are still holding onto the good news that he cancer is considerably less and we hope and pray that it will continue to do so.
Love to All
Christi, Bo and Addi
PS I like to think that the blood is clotting because it is carrying away the cancer and disposing properly...

2009-08-20T16:32:00.003-04:00

Seriously, here comes the next wave. We received a call last night from Susan, Dr. Crawford's Assistant and I believe the first words out of my mouth was, "Susan when your name popped up on the phone, I just threw up in my mouth. Can't we get 24 hours of pure happiness." With that being said, she didn't like that seeing her name made us feel that way, but immediately I thought, "It can't be that bad, Dr. Crawford would call us personally if it was."
Enough jabbering, they called to let us know that the radiology report (this is why we wait for the report before we get to excited. Someone remind us next time in case we forget.) did see the cancer regressing in the liver and the bones. (I do think I failed to mention that when we did chemo we did an intravenous drug to help stimulate bone growth and help in the healing and fighting cancer there as well) But there are two spots they believe the be blood clots that they would like to ultrasound. There is a chance these will turn out to be nothing, but on the flip side if they are, then we need to take care of asap. One is in his lung and the more concerning one is in his interior jugular. Scary, we know where the jugular leads and this is the one they want to ultrasound immediately. That location isn't common, and probably not good. All this stems down to another trip to Duke tomorrow for the ultrasound and then determining our treatment plan if it turns out to be something we need to take care of immediately. They are unsure what might of caused these, but again our doctors are great and Dr. Crawford, Susan and Dr. Palmer are working together for the best course of treatment and getting us in as quickly as possible.
Thank for all the support and never a dull moment with Bo.
Love to All
Christi, Bo and Addi

2009-08-18T19:44:00.002-04:00

Hello to All - Finally a point for Team BO! Bo had a scan today that showed the chemo, Altima, is shrinking the tumors on his liver. The doctors also believe that his bones are trying to heal themselves as well. So today we did another round of chemo and added an additional medicine to help with his bone growth. The bone growth might make Bo feel achy, but will hopefully help with the healing. So yeah, yeah, yeah.
Dr. Crawford did let us know that Altima has just been approved as a maintenance drug and treatment plan. What that means for us is that we will not count this chemo in cycles or how many times we will do it. There will be no number limit, we will stop when this is too much for Bo to handle or when/dare I say if the cancer comes back. Then obviously it isn't working anymore. This type of chemo is different than the "typical" chemos people take. Bo should keep his hair and hopefully as the cancer keeps leaving his body he will get stronger and so therefore there will be less and less side effects.
We are being cautiously optimistic, taking today to be happy. But we do realize reality. But one day daring to "Dream Big" hopefully won't hurt.
Love to All
Christi, Bo and Sweet Addi
PS I made the parental decision to make sure Addi's first car is an Altima!

2009-08-17T17:52:00.002-04:00

Okay we stink...so sorry. Bo has been doing so well, one full week at work with just a late start, I was afraid to post anything to jinx him. With that being said, I thought it would be a grand ol' time to get the stomach flu. For some reason I always get these things anymore, I wonder if it pertains to the stress in my life. I always to try "act" stress free, I guess my immune system knows otherwise. At least it was just a 24 hour sickness with another 48 being puny (another is that a word)
As I mentioned Bo is doing well, so we are hopefully optimistic that tomorrow will bring good news. We start off bright and early with scans and then the doctor around lunchtime and hopefully chemo. Sad when you are hoping for chemo, but it just might mean it is working. We will post when we hear anything. Thanks for the thoughts and prayers.
Love to All
Christi, Bo and Addi
PS - I have been stressing to Bo lately that we are not going to let the doctors convince us he is sick because of what his scans might say. He is feeling better and that is what matters most. Positive thinking will triumph, with a few prayers.

2009-07-29T11:47:00.003-04:00

So sorry to be gone for so long. Lots to do and lots has been happening...Where to start. Bo did well with his first round of chemo. If you remember there are 3 weeks between each session. So right before his second round we decided to go see my family in Kansas. Note that this was planned a while ago, but we had things change medically so I never purchased the tickets until it was a for sure go ahead. Well we just decided to go for it.
With that said, the 5 Morgan kids (and spouses) planned a surprise wedding anniversary party for our parents 40th. I have to say we were so proud of ourselves and our parents friends for keeping it a secret. We had to tell my dad "something" was planned, but we kept our mom in the dark and boy was she surprised! A big thank you to all the family and friends that showed up to help us celebrate, it will be one of those for the memories.
I did get to see a few friends while back home, unfortunately under unfortunate circumstances. A friend of mine, Jessica, her mom Joy passed away after battling cancer for 4 years. She was an amazing woman that knew the secret on how to live life, always to the fullest. She will be missed. But her passing allowed me to see some of the sweetest ladies I know. I do think they all shrunk, don't get me wrong ladies, you were not the tallest in school, but putting you all together with me, makes Christi one big giant. Anyway, it was good to see everyone, we need to get on planning a trip with all the ladies together.
Also in the news, tomorrow I will be an aunt again, Brady Morgan should be born via c-section, so prayers out to Curtis, Erin and Ryan.
Back to Bo's health, we made it back on Sunday for our second round of chemo on Monday. Bo appears to be doing well, it typically takes a couple days for the chemo to hit, but for now, we are just fatigued. Let's hope and pray it stays that way. We will visit with Dr. Crawford on August 18th for scans and treatment plan, so mark your calendars that will be a big day. Until then, we play and we play hard.
Love to All
Christi, Bo and Addi

2009-07-10T10:09:00.003-04:00

Just a quick update to say thank you to everyone for their thoughts and well wishes. Bo is a little fatigued with the chemo, but they do say the rest of the side effects might come about 5-7 days after, so the first of next week. We hope to be out and about in a short while.
See you all soon
Love to All
Bo, Christi and Addi

2009-07-08T22:02:00.003-04:00

Hello to All and sorry for the delay in posting. Our journey has taken, yet another path. As many of you know, Bo has not been feeling well. He has been battling gout-like symptoms and not feeling like himself. Last week we finally made it up to Duke to talk with Dr. Palmer, our transplant doctor and look at some of our meds. He didn't seem overly surprised about Bo's "gout" it appears that the anti rejection meds have been known to cause problems. He has increased some of his other meds to hopefully elevate the swelling and pain. In the meantime we ran extensive tests on his joints, all came back clear. And we also performed a CT scan to check Bo's lungs. Bo's lungs are looking good, but this is where our path changed. When you perform the CT scan it is upper abdominal that shows all organs above the waist. Here comes the tough part, the doctors have found spots on Bo's liver and spine (bones)
Deep breath everyone, In and out....in and out...
It appears Bo has cancer on his liver and spine. At this time we are unsure if it the same cancer mutating and spreading or a different cancer due to the immune suppressants. Today we went up to have a PET scan and brain MRI. It appears to confirm what they "accidentally" found on the CT that there is cancer (nothing will be 100% until the biopsy is done, but we are pretty confidant this is cancer) Good news, he appears to only have it on his liver and spine. Since it was found accidentally they were afraid it might be elsewhere. Another bit of good news is that the spot on the brain appears unchanged...we are hoping that means no cancer there just some abnormality from everything he went through with the transplant.
I know this is a lot to swallow and trust me there are not 3 people (Bo, Addi and myself - along with family) that did not want to ever share this news with you, nor so quickly, but do know we are strong and fighting. After we spoke with the doctors they immediately started Bo on chemo, today to be exact. He is trying the last chemo he took that he responded to positively before transplant. We are optimistic that he will react in the same way. We will do this again in 3 weeks and then at 6 weeks perform another CT scan to see how he is reacting. While this continues Dr. Crawford is setting up for a biopsy and getting him established with Dr. Potti in charge of Duke's Genomic project. (I could write a novel on this, but in a nutshell they take the biopsy, study it and create a treatment plan specific to your DNA and Cancer. This takes a couple weeks to do, so in the meantime chemo)
I know this is a complete and utter shock to all. We have had a couple days to get over the initial shock, and I am always happier with a plan. As you can see Dr. Crawford and Susan are on it. We have options. As I have told many of you, "we are not "there'."
Please understand we do not have all the answers, more tests will be done and we will continue to work with our transplant doctor and oncologist together. We have been riding waves of emotions and are truly sorry to all that support and love us that this cannot ever be simple. But do know, we want you to fight with us, pray with us, hope with us and believe that We will all overcome.
Love to All
Christi, Bo and Addi
PS We would call everyone of you individually, but right now we are just holding Addi dear to us and enjoying life...

2009-06-28T20:37:00.002-04:00

I really need to double check and see if our posts, post. Anyway, we didn't end up making it to Duke last Thursday. Bo wasn't feelig well and we reschedule until this Thursday. Dr. Crawford and Susan are already starting to try and help figure out what might be the problem and hopefully the rheumatologist will be able to fit us in as well. Thanks for the prayers, Bo isn't feeling to well and can really use them right now.
Love to All
Bo, Christi and Addi
PS - I am not sure quite sure what it happening with posting, some have said something weird is popping up. Please let me know what it is and I will check it out.
Thanks

2009-06-23T11:25:00.002-04:00

For some reason our Father's Day post didn't post so we are resending with a little more information. Bo is still have a harder time right now. The gout or whatever it is, has appeared to move out of his elbow and ankles, but he still have spots where he is uncomfortable. Right now one of his calves are hurting. With all the uncomfortableness it has made it near impossible for Bo to exercise and do the necessary physical elements needed to keep his new lungs in shape. So of course I worry. We visit the doctors on Thursday, so I pray they can help with his pain and move him forward. I pray this is an easier fix and they won't want to admit his to run more tests. We will let you know as soon as we hear anything. Now to what we wrote earlier...

Hello to All! Happy Father's Day! Wow this one is much different than last year. Amazing how far you can come in a year. I just pray for many many more. I knew when I married Bo (one of the many requirements to meet) that he would be a wonderful father. He would probably spoil her rotten, he does, but what little girl doesn't want her Daddy to spoil her rotten. I think you get parenting right though when you child crawls into bed with you and says "Family time is her favorite time in bed" Or "Group Hug" "family hug". We are off to visit the Dad that we can today. First GrandDaddy Berry in Hendersonville with Great Papa...wow it has been a while since we have been able to travel there. Then back home to see Papa with a little cook out, hopefully Grams will not do to much. Hopefully along with way we will get to talk with Papa Cow in Kansas - oh how we miss him! So Happy Father's Day to All, and I hope and pray everyone is as lucky as I am to be surrounded by such wonderful men!
Love to All
Christi, Bo and Addi

2009-06-15T20:02:00.002-04:00

Hello to All - Another weekend come and gone. We finally stressed Bo's discomfort and the doctors are trying to work with his meds to help the pain. I do have to say after talking with some gout sufferers, this isn't for the faint heart and Bo managed with the best of them. Now let's just pray this isn't something reoccurring. We have spent the last weekend at one pool or another. I really need to borrow Bo's camera and take some pictures, or I could down load the old ones I have on mine, but our little girl is slowly, but surely becoming a water bug. She is swimming right and left. A little scary that she is becoming so fearless, but her overprotective mother is right there with one eye always on her.
Nothing to new to report here busy wise or health wise. I think we are back to appreciating stable.
Love to All
Christi, Bo and Addi
I do want to send a special prayer request out to an outstanding family in Lawrence. Dr. Frederick, an icon in Lawrence, passed away this past week after having a bicycle accident. He was a man with great integrity, humor and generosity. (He helped me many times at KU, even getting my first "job" there) He will be greatly missed. Please pray for his family. Losing someone so unexpectedly is terrible. I cannot image that emotions that they are trying to process. I feel like the rest of us are sad, but are blessed because Dr. Frederick shines through each of his sons. Each one of them are the walking examples of what he was about, how he treated everyone, and how we should lead our lives. If you had the pleasure of knowing him or know anyone in his family, you are truly a blessed person. Our town is forever changed.

2009-06-08T16:39:00.002-04:00

Hello to All - Thank God the sun is shining! It isn't suppose to for the rest of the week, but we have had 2 1/2 days of it. I know be quiet from all you in Kansas, but your rain and storms will be here soon enough. Clint I hope you are alright in CO, as Mom would say, "Go to the basement"
Things here have been alright. Bo has been having issues with his feet/ankles swelling. He went to Duke on Tuesday and they ran some tests. Bo has another part of the hospital looking at his case, rheumatology (spelling). It sounds like, smelt like, looked like gout, but the test says it isn't gout. Maybe pseudogout, but guess what, they want to wait and see what happens. So we are planned to go up June 25th, maybe sooner if the brain trust of Duke gets any hints on what is happening. Seriously is anyone keeping tabs: oncology (Lung), surgery of transplant and all the fields Bo visited from his complications (ICU, ENT, vocal cords, respiratory, GI for feeding tube and wrap procedure, physical therapy for body and hand) Radiology/Oncology Specialist, Brain Surgeon, Brain Oncology, Rheumotology, I know I missed some...can you imagine the group that gets together to talk about him. Who is in charge? I guess Dr. Crawford, he won the Bo (or more dreaded Christi) lottery first. No complaints, but I am beginning to think that Bo to many times previously in his life said he disliked Duke (he is a UNC fan) so now we are having to love all parts of DUKE. The doctors love it when I play doctor and try to guess what the problem is, so if you all have any ideas throw it at me, I am not afraid to throw anything at them. (someone mentioned with the heat wave dehydration would have some effects like gout on him....hmmmm)
Love to All
Christi, Bo and Addi
A huge congrats to Jerrold for having a clear scan!
PS I almost forgot. At church on Sunday Addi was with me quietly working on a book that has puzzles inside it. It was new so she had to tear the puzzle pieces apart. As she was doing this, (proves a child is always listening) the readings were happening. The second story about about someone being a terror. Addi not too quietly looks a me and says, "I am terror." The woman beside us busted out laughing. To Addi's defense I think she meant she was tearing the puzzle pieces apart. But, well on some days, she hit the nail on the head. We love our little Terror/Tearer...

2009-06-01T10:12:00.002-04:00

Hello to all - I hope you enjoyed your weekend. Our weather here is finally without rain and well beautiful. Addi had her first dance recital...she did a great job and performed on a huge stage without freezing up. Her Mom and Dad couldn't be more proud. I will post pictures soon. Then she decided to get sick. Strep is running amuck here, so let's hope we can keep Bo safe from it.
With that being said. This year we are celebrating quietly his 3 years of cancer and 1 - year post double lung transplant. Has it already been a year? There have certainly been some bumps in the road, but as I always say, we are still traveling, together, down our road. Thank you all for your love and support. Also a huge thanks to your prayers, we truly would not be here without them. Tonight please say prayer to the families that lost their loved ones that provided Bo with his lungs, may they be in our prayers and thoughts always.
Love to All
Christi, Bo and Addi

2009-05-24T21:28:00.002-04:00

Thank You, Thank You, Thank You. I am going to take our news in a positive way and keep partying it up this summer. We just spoke with our doctors and they have decided to wait and do another MRI at the end of the summer. Dr. Crawford spoke with Dr. Friedman (the surgeon) and Dr. Friedman isn't convinced this is cancer. He said the "spot" is so small he would like to wait and give it another two months to see if there is any change to help their determination of what this is. It would be a risky procedure and before they put Bo through it, and with everything else he has gone through, they would like to wait.
They did apologize for flip flopping, but I assured them that if they are putting off brain surgery, I am okay with that. So we wait some more and pray, pray, pray that the "spot" leaves. The way I figure all our prayers have delayed this surgery, so a little more time and this will go away on it's own. Somehow I need to try and find a way to get Bo to meditate and visualize this leaving...
Love to All - Enjoy your weekend
Christi, Bo and Addi
PS - please say a few prayers for our friend Mindy's Dad. He was recently diagnosed with colon cancer and they are going through the beginning phases of how to deal with hearing the "cancer" word. I do hope they will find their strength quickly, find the best method to fight this, and realize cancer will not get them down. If you remember my Dad was diagnosed with color cancer 4 months after Bo was diagnosed with lung cancer, no one is slowing him down! Love you all...

2009-05-19T21:10:00.002-04:00

Just a quick note to let you know that we do not have a date yet. Dr. Friedman is out of town until tomorrow and he is going to talk with Dr. Crawford before we schedule. We "should" hear by the end of the week.
We will keep you posted.
Love to All
Christi, Bo and Addi

2009-05-15T09:42:00.003-04:00

Hello to All - I hope you are enjoying the beginnings of summer before things get crazy hot. Well things never get to crazy hot in NC, some days but in general it is all good.
Sorry it has taken so long to post, but we just heard back from the doctors this week and needless to say we needed a little time to process. (plus most our family is on a trip to the Dominican that our doctors wouldn't let us go on) It looks like Bo will be having Brain Surgery this summer. We haven't set the date yet, we are still waiting to hear. Bo is requesting June, late June, but we are unsure if time is of the essence or what. It is our understanding that our team of doctors got together to discuss the "spot" and determined the only real way to figure out what this is, is surgery. All roads would end this way, so I guess let's skip everything else and just "Get er done." (that was for Curtis) So you see now why we haven't phoned down there and mentioned over the phone, let's give them a little more time to enjoy themselves.
The procedure will be done a Duke, I guess this is the only way we got to be on every floor of the hospital there, lucky us. Dr. Freidman, who performed Ted Kennedy's procedure has signed up to take Bo (and myself) on. Seriously Bo is more agreeable (go figure) than I am most of the time. (He is sedated, (I might take that route this time) I am too nosey, oh well. We are optimistic that this will fix the problem and then we can go on living our lives. Disney here we come!
We will let you know when our "procedure" will be performed. Let's pray Bo can give us an uneventful one. I know I am praying for that. I also pray that Addi will not spend the summer in a hotel again. She is such a trooper, but you always want the best for them. She really will start to think the summer house is our summer house before long.
Love to All
Christi, Bo and Addi