Hello to All - Just a quick update. We did make it up to Duke yesterday, barely. It was decided Bo wasn't feeling well enough to start any new chemo. So our plan for attack right now is to focus on his nausea and strength. They would like a local nurse to visit him at the house more frequently and to keep better tabs on him. Hopefully this will start soon, the sooner she comes the better we can adjust his meds or change them to help him feel better and actually keep some food in his system. Depending on how quickly we can handle this, then we go from there.
Many of you ask how you can help. Just be there for Bo. It is quite lonely feeling sick all the time. He cannot answer his phone all the time, but he does a great job responding back to emails. I know he would love to hear from everyone to help pass the time until he feels better. Also mark your calendars for February 27, 2010 for another year of Beating the Odds at Raceworld USA in Cornelius, NC. We are looking for silent auction items, sponsors and helpers to sell tickets!
Love to All
Christi, Bo and Addi

Hello to All - Oh I so wished I could tell you all that Bo was doing better (since I did say no post means no news is good news, but this time we are stable) He still isn't eating very much and is extremely weak. We keep trying, so we try some more.
With that being said, we are heading up to Duke tomorrow. After all the tests ran when Bo was in the hospital they do feel like a change is necessary in Bo's treatment plan. There is a slight change in his liver with the cancer, no where near where it was in July when they discovered it, but enough to warrant a different chemo. We have all decided this might be the best anyway, since we are unsure of what is making Bo sick, maybe the Altima maybe not, but we will do whatever we can to make him feel better. I just pray and pray that Bo will find the strength to travel to Duke tomorrow so the doctor can help him feel better. When you are feeling bad I am sure that last thing you want to do is drive and get chemo...
Bo's doctors have been amazing again and checking on us and trying to make sure Bo knows they want to exhaust every option out there for him and try to discover what is causing him not to feel well, I pray we can do it soon. Chicken broth can only get you along for so long.
I will let you know if we travel tomorrow. Please make sure to tell your family how much you love them and say a quick prayer tonight for everyone's health and happiness. We will find a way through this, we are just riding the roller coaster.
Love to All
Christi, Bo and Addi

No Duke today, Bo is resting and trying to feel better. J - I will check with doctors about his immune levels. They have been watching, but one more test cannot hurt right?

Here a some Halloween Pictures of our Alice and some friends trick or treating at the office...

So Sorry this weekend has been a blur and well, the blog got left in the dust. Bo got the okay to come home from the hospital on Friday. So if you were on I-85, that was me leaving you in the dust...I did set cruise control and tried to stay only 6 over....hehehe
With that being said, Bo's MRI Brain scan came back the same...he still has those 2 previous spots and they remain unchanged, so that is good news. Bad news is we still do not know what the problem is. They released Bo with him feeling a little better, but not himself. (I think he decided he had enough and wanted to try and make trick or treating.)
He is home, still in bed not feeling well, but eating a little and getting more fluids in him. I think the plan right now is to go back up tomorrow, hopefully, talk with Dr. Crawford and keep trying to figure out what might be the problem. I have contacted Dr. Palmer already and he had some tests ran while Bo was in the hospital and Bo's transplant meds appear to be fine, so hopefully they are not causing the problem, but maybe. He is willing to try anything, tweak a little, and see if that will help.
Thanks for the prayers and I will get pictures of Addi up soon, aka Alice in Wonderland and let you know when the next appointment will be and what we will do from there.
Thanks for all the love, support and patience.
Love to all
Christi, Bo - in bed not feeling well and Addi, bouncing all the walls with candy - we limit to one a day, but I think she stashed some somewhere in the house because her energy is 10 fold - that or I am getting older (never) Or maybe because Christmas is everywhere!

Hello to All - Today was fairly uneventful. More fluids, more tests and tonight they took Bo for a Brain MRI. Bo spent most of the day with his sister Caroline and trying to keep the doctors and nurses from coming in so he can get some rest. They want to run their tests, figure out what the problem is and kick him out, he just wants to feel better without being poked 500 times...to meet in the middle, is that possible?
We will get some results hopefully tomorrow and maybe find a solution. Please keep praying that Bo will find a way to keep some food in his stomach and that nothing new or old shows up on the Brain MRI.
Love to All
Christi, Bo and Addi
See I told you it isn't good when we post frequently...

Hello again - so quickly I know. Well today didn't go as uneventful as we wanted. Bo was admitted into the hospital today to hopefully just treat dehydration and nausea. They immediately hooked him up to an IV at the clinics and then moved him to the hospital. They are only expecting him to be there for a couple days. They just really want to help him get over this hump of not feeling good.
With that being said, they couldn't get an IV in him yesterday to run the CT with contrast, they just performed a CT. From what they can tell, they do not feel that the cancer has changed. Once they pump him up with fluids, they will try to run the test again with contrast and make sure. They are also going to run a Brain MRI and check the infamous "spots" on his brain.
We all are hoping and pushing towards that Bo just picked up with flu and hasn't been able to overcome it on his own. So let's keep praying for that and not anything any more exciting. I guess it is all in perspective when you are praying for a flu bug...
Love to All
Christi, Bo and Addi

Hello to All - Christi here - Bo and I made a pack that we would update once a week, even if we have nothing to say, which for anyone that knows us, having nothing to say really never happens.
Today we head up to Duke for the infamous scans. (We meet with Dr. Crawford first thing tomorrow morning for the results - BIG Prayers tonight please) With that being said, I am nervous. Bo has been under the weather for a week now. He hasn't been able to keep anything down and that makes me nervous, because with cancer, losing weight is never a good option. It is possible, Bo got one of the many types of "flu" going around, but it is hard not to "go there" whenever he is feeling bad. So I am heading off the doctors and sending an email up ahead of time to let them know we are having stomach issues and we are not leaving until we find out what to do. Or at least get some medicine to help for the time being. So I worry, I am beginning to get more wrinkles than I can count!
Addi and I have been doing well staying away from the flu. The poor girl had her 4 year old check up last week and that made her out of sorts, but she is better and ready to trick or treat. I promise pictures of that soon.
Love to all and we should update later this week with the results.
Christi, Bo and Addi