Just a quick update to say thank you to everyone for their thoughts and well wishes. Bo is a little fatigued with the chemo, but they do say the rest of the side effects might come about 5-7 days after, so the first of next week. We hope to be out and about in a short while.
See you all soon
Love to All
Bo, Christi and Addi

Hello to All and sorry for the delay in posting. Our journey has taken, yet another path. As many of you know, Bo has not been feeling well. He has been battling gout-like symptoms and not feeling like himself. Last week we finally made it up to Duke to talk with Dr. Palmer, our transplant doctor and look at some of our meds. He didn't seem overly surprised about Bo's "gout" it appears that the anti rejection meds have been known to cause problems. He has increased some of his other meds to hopefully elevate the swelling and pain. In the meantime we ran extensive tests on his joints, all came back clear. And we also performed a CT scan to check Bo's lungs. Bo's lungs are looking good, but this is where our path changed. When you perform the CT scan it is upper abdominal that shows all organs above the waist. Here comes the tough part, the doctors have found spots on Bo's liver and spine (bones)
Deep breath everyone, In and out....in and out...
It appears Bo has cancer on his liver and spine. At this time we are unsure if it the same cancer mutating and spreading or a different cancer due to the immune suppressants. Today we went up to have a PET scan and brain MRI. It appears to confirm what they "accidentally" found on the CT that there is cancer (nothing will be 100% until the biopsy is done, but we are pretty confidant this is cancer) Good news, he appears to only have it on his liver and spine. Since it was found accidentally they were afraid it might be elsewhere. Another bit of good news is that the spot on the brain appears unchanged...we are hoping that means no cancer there just some abnormality from everything he went through with the transplant.
I know this is a lot to swallow and trust me there are not 3 people (Bo, Addi and myself - along with family) that did not want to ever share this news with you, nor so quickly, but do know we are strong and fighting. After we spoke with the doctors they immediately started Bo on chemo, today to be exact. He is trying the last chemo he took that he responded to positively before transplant. We are optimistic that he will react in the same way. We will do this again in 3 weeks and then at 6 weeks perform another CT scan to see how he is reacting. While this continues Dr. Crawford is setting up for a biopsy and getting him established with Dr. Potti in charge of Duke's Genomic project. (I could write a novel on this, but in a nutshell they take the biopsy, study it and create a treatment plan specific to your DNA and Cancer. This takes a couple weeks to do, so in the meantime chemo)
I know this is a complete and utter shock to all. We have had a couple days to get over the initial shock, and I am always happier with a plan. As you can see Dr. Crawford and Susan are on it. We have options. As I have told many of you, "we are not "there'."
Please understand we do not have all the answers, more tests will be done and we will continue to work with our transplant doctor and oncologist together. We have been riding waves of emotions and are truly sorry to all that support and love us that this cannot ever be simple. But do know, we want you to fight with us, pray with us, hope with us and believe that We will all overcome.
Love to All
Christi, Bo and Addi
PS We would call everyone of you individually, but right now we are just holding Addi dear to us and enjoying life...

I really need to double check and see if our posts, post. Anyway, we didn't end up making it to Duke last Thursday. Bo wasn't feelig well and we reschedule until this Thursday. Dr. Crawford and Susan are already starting to try and help figure out what might be the problem and hopefully the rheumatologist will be able to fit us in as well. Thanks for the prayers, Bo isn't feeling to well and can really use them right now.
Love to All
Bo, Christi and Addi
PS - I am not sure quite sure what it happening with posting, some have said something weird is popping up. Please let me know what it is and I will check it out.
Thanks

For some reason our Father's Day post didn't post so we are resending with a little more information. Bo is still have a harder time right now. The gout or whatever it is, has appeared to move out of his elbow and ankles, but he still have spots where he is uncomfortable. Right now one of his calves are hurting. With all the uncomfortableness it has made it near impossible for Bo to exercise and do the necessary physical elements needed to keep his new lungs in shape. So of course I worry. We visit the doctors on Thursday, so I pray they can help with his pain and move him forward. I pray this is an easier fix and they won't want to admit his to run more tests. We will let you know as soon as we hear anything. Now to what we wrote earlier...

Hello to All! Happy Father's Day! Wow this one is much different than last year. Amazing how far you can come in a year. I just pray for many many more. I knew when I married Bo (one of the many requirements to meet) that he would be a wonderful father. He would probably spoil her rotten, he does, but what little girl doesn't want her Daddy to spoil her rotten. I think you get parenting right though when you child crawls into bed with you and says "Family time is her favorite time in bed" Or "Group Hug" "family hug". We are off to visit the Dad that we can today. First GrandDaddy Berry in Hendersonville with Great Papa...wow it has been a while since we have been able to travel there. Then back home to see Papa with a little cook out, hopefully Grams will not do to much. Hopefully along with way we will get to talk with Papa Cow in Kansas - oh how we miss him! So Happy Father's Day to All, and I hope and pray everyone is as lucky as I am to be surrounded by such wonderful men!
Love to All
Christi, Bo and Addi

Hello to All - Another weekend come and gone. We finally stressed Bo's discomfort and the doctors are trying to work with his meds to help the pain. I do have to say after talking with some gout sufferers, this isn't for the faint heart and Bo managed with the best of them. Now let's just pray this isn't something reoccurring. We have spent the last weekend at one pool or another. I really need to borrow Bo's camera and take some pictures, or I could down load the old ones I have on mine, but our little girl is slowly, but surely becoming a water bug. She is swimming right and left. A little scary that she is becoming so fearless, but her overprotective mother is right there with one eye always on her.
Nothing to new to report here busy wise or health wise. I think we are back to appreciating stable.
Love to All
Christi, Bo and Addi
I do want to send a special prayer request out to an outstanding family in Lawrence. Dr. Frederick, an icon in Lawrence, passed away this past week after having a bicycle accident. He was a man with great integrity, humor and generosity. (He helped me many times at KU, even getting my first "job" there) He will be greatly missed. Please pray for his family. Losing someone so unexpectedly is terrible. I cannot image that emotions that they are trying to process. I feel like the rest of us are sad, but are blessed because Dr. Frederick shines through each of his sons. Each one of them are the walking examples of what he was about, how he treated everyone, and how we should lead our lives. If you had the pleasure of knowing him or know anyone in his family, you are truly a blessed person. Our town is forever changed.

Hello to All - Thank God the sun is shining! It isn't suppose to for the rest of the week, but we have had 2 1/2 days of it. I know be quiet from all you in Kansas, but your rain and storms will be here soon enough. Clint I hope you are alright in CO, as Mom would say, "Go to the basement"
Things here have been alright. Bo has been having issues with his feet/ankles swelling. He went to Duke on Tuesday and they ran some tests. Bo has another part of the hospital looking at his case, rheumatology (spelling). It sounds like, smelt like, looked like gout, but the test says it isn't gout. Maybe pseudogout, but guess what, they want to wait and see what happens. So we are planned to go up June 25th, maybe sooner if the brain trust of Duke gets any hints on what is happening. Seriously is anyone keeping tabs: oncology (Lung), surgery of transplant and all the fields Bo visited from his complications (ICU, ENT, vocal cords, respiratory, GI for feeding tube and wrap procedure, physical therapy for body and hand) Radiology/Oncology Specialist, Brain Surgeon, Brain Oncology, Rheumotology, I know I missed some...can you imagine the group that gets together to talk about him. Who is in charge? I guess Dr. Crawford, he won the Bo (or more dreaded Christi) lottery first. No complaints, but I am beginning to think that Bo to many times previously in his life said he disliked Duke (he is a UNC fan) so now we are having to love all parts of DUKE. The doctors love it when I play doctor and try to guess what the problem is, so if you all have any ideas throw it at me, I am not afraid to throw anything at them. (someone mentioned with the heat wave dehydration would have some effects like gout on him....hmmmm)
Love to All
Christi, Bo and Addi
A huge congrats to Jerrold for having a clear scan!
PS I almost forgot. At church on Sunday Addi was with me quietly working on a book that has puzzles inside it. It was new so she had to tear the puzzle pieces apart. As she was doing this, (proves a child is always listening) the readings were happening. The second story about about someone being a terror. Addi not too quietly looks a me and says, "I am terror." The woman beside us busted out laughing. To Addi's defense I think she meant she was tearing the puzzle pieces apart. But, well on some days, she hit the nail on the head. We love our little Terror/Tearer...

Hello to all - I hope you enjoyed your weekend. Our weather here is finally without rain and well beautiful. Addi had her first dance recital...she did a great job and performed on a huge stage without freezing up. Her Mom and Dad couldn't be more proud. I will post pictures soon. Then she decided to get sick. Strep is running amuck here, so let's hope we can keep Bo safe from it.
With that being said. This year we are celebrating quietly his 3 years of cancer and 1 - year post double lung transplant. Has it already been a year? There have certainly been some bumps in the road, but as I always say, we are still traveling, together, down our road. Thank you all for your love and support. Also a huge thanks to your prayers, we truly would not be here without them. Tonight please say prayer to the families that lost their loved ones that provided Bo with his lungs, may they be in our prayers and thoughts always.
Love to All
Christi, Bo and Addi