Monday, November 30, 2009

Hello - Just a quick note. We are still in the hospital getting fluids. They doctors should make their rounds late this afternoon and maybe we will have an idea of what the next step it.
His kidneys have minimal output right now, but sometimes it takes 24 hours to see how things are progressing.
Please keep praying.
Love to All
Christi, Addi and Bo

Sunday, November 29, 2009

Hello to All - It it with an extremely heavy and worried heart that I type this to you all. I do understand this is going to be a shock to everyone, as me and the family as well, Bo's body has taken a dramatic turn in the last 48 hours. Addi and I returned early to Bo with him considerably, fatigued, confused and bloated. We spent the night with him to bring him to the emergency roon early this morning.
It appears that Bo's kidneys are struggling and potentially shutting down. This could be due to dehydration, so we are getting fluids now in hopes they will start working again. The next 24-48 hours are critical. Please if you have a moment to say a prayer, please pray Bo's kidneys get working better and that we can get him to chemo.
I am in constant communication with the Duke doctors and everything possible that could be done is being done.
I will try my best for myself or someone else to keep you updated.
Love to All
Christi, Addi and Bo
At this time all we ask for is prayers and as help is needed I promise we will ask for help. For now please no visitors, we are hoping rest and quiet will help.

Tuesday, November 24, 2009

Hello to All - and Happy Thanksgiving!
I type this a little freaked out. Originally we had planned to visit my family in Kansas for the first time at Thanksgiving (Bo has to see the craziness of my Mother), but Bo really isn't feeling well enough to fly. He has developed a new, painful clot, in his leg which makes walking hard and well, painful. So he is insisting that Addi and I go on to Kansas. Don't get me wrong I am excited to see everyone in Kansas, I just fear that I will be so stressed out about Bo that it will be hard to enjoy myself. (As I keep talking to myself) I know that Bo is in wonderful hands and everyone with spare time will be checking in on him, I just don't want to leave him. I think this is the longest time in our 3 1/2 year battle I will not see him. Enough boo-hooing, I will have fun, try to rest, (botox these wrinkles out before I come home, right...)put on another 10 lbs compared to all the pasta and carbs I am making Bo and let Addi ride Papa Cow's, Cows and Horses.
Everyone have a wonderful Thanksgiving and if you are local to us, please check on Bo. We are hoping we can get up to Duke soon for chemo, we just need to fatten him up some more.
Love to All
Christi, Bo and Addi

Monday, November 16, 2009

Hello to All - Just a quick update and hopefully a few entertaining pictures. We met with Bo's nurses twice last week and they were incredible. They are ready for a plan of attack to help Bo in any way he sees fit. Right now we are just struggling with getting Bo to "see fit". He has been able to keep his food down and the pain managed, now to get him out of bed, showered and eating consistently...Now is when I miss those "mean" ICU nurses and the physical therapy. Me fussing at him has become white noise. So anyone that would like to take on the challenge I am more than willing to make this a relay.
With that being said, Addi is still the medicine we all need. She had a couple birthday parties this weekend (and missed another and the Panthers game, go Panthers) But well worth it, you can see from the pictures attached.
Love to all and we hope to see you soon
Christi, Bo and Addi

Wednesday, November 11, 2009

Hello to All - Just a quick update. We did make it up to Duke yesterday, barely. It was decided Bo wasn't feeling well enough to start any new chemo. So our plan for attack right now is to focus on his nausea and strength. They would like a local nurse to visit him at the house more frequently and to keep better tabs on him. Hopefully this will start soon, the sooner she comes the better we can adjust his meds or change them to help him feel better and actually keep some food in his system. Depending on how quickly we can handle this, then we go from there.
Many of you ask how you can help. Just be there for Bo. It is quite lonely feeling sick all the time. He cannot answer his phone all the time, but he does a great job responding back to emails. I know he would love to hear from everyone to help pass the time until he feels better. Also mark your calendars for February 27, 2010 for another year of Beating the Odds at Raceworld USA in Cornelius, NC. We are looking for silent auction items, sponsors and helpers to sell tickets!
Love to All
Christi, Bo and Addi

Monday, November 09, 2009

Hello to All - Oh I so wished I could tell you all that Bo was doing better (since I did say no post means no news is good news, but this time we are stable) He still isn't eating very much and is extremely weak. We keep trying, so we try some more.
With that being said, we are heading up to Duke tomorrow. After all the tests ran when Bo was in the hospital they do feel like a change is necessary in Bo's treatment plan. There is a slight change in his liver with the cancer, no where near where it was in July when they discovered it, but enough to warrant a different chemo. We have all decided this might be the best anyway, since we are unsure of what is making Bo sick, maybe the Altima maybe not, but we will do whatever we can to make him feel better. I just pray and pray that Bo will find the strength to travel to Duke tomorrow so the doctor can help him feel better. When you are feeling bad I am sure that last thing you want to do is drive and get chemo...
Bo's doctors have been amazing again and checking on us and trying to make sure Bo knows they want to exhaust every option out there for him and try to discover what is causing him not to feel well, I pray we can do it soon. Chicken broth can only get you along for so long.
I will let you know if we travel tomorrow. Please make sure to tell your family how much you love them and say a quick prayer tonight for everyone's health and happiness. We will find a way through this, we are just riding the roller coaster.
Love to All
Christi, Bo and Addi

Tuesday, November 03, 2009

No Duke today, Bo is resting and trying to feel better. J - I will check with doctors about his immune levels. They have been watching, but one more test cannot hurt right?
Here a some Halloween Pictures of our Alice and some friends trick or treating at the office...

Monday, November 02, 2009

So Sorry this weekend has been a blur and well, the blog got left in the dust. Bo got the okay to come home from the hospital on Friday. So if you were on I-85, that was me leaving you in the dust...I did set cruise control and tried to stay only 6 over....hehehe
With that being said, Bo's MRI Brain scan came back the same...he still has those 2 previous spots and they remain unchanged, so that is good news. Bad news is we still do not know what the problem is. They released Bo with him feeling a little better, but not himself. (I think he decided he had enough and wanted to try and make trick or treating.)
He is home, still in bed not feeling well, but eating a little and getting more fluids in him. I think the plan right now is to go back up tomorrow, hopefully, talk with Dr. Crawford and keep trying to figure out what might be the problem. I have contacted Dr. Palmer already and he had some tests ran while Bo was in the hospital and Bo's transplant meds appear to be fine, so hopefully they are not causing the problem, but maybe. He is willing to try anything, tweak a little, and see if that will help.
Thanks for the prayers and I will get pictures of Addi up soon, aka Alice in Wonderland and let you know when the next appointment will be and what we will do from there.
Thanks for all the love, support and patience.
Love to all
Christi, Bo - in bed not feeling well and Addi, bouncing all the walls with candy - we limit to one a day, but I think she stashed some somewhere in the house because her energy is 10 fold - that or I am getting older (never) Or maybe because Christmas is everywhere!