Tuesday, February 27, 2007

Sometimes kids do the funniest things...

This is just a cute one from Valentine's Day

Sunday, February 25, 2007

Hello all. sorry for the delay in me writing. I hope everyone is doing well and keeping healthy. We had a great weekend here at the Johnson Household. Friday we had dinner at Phil and Lena's with 11 adults (minus Justin) and 9 kids. Needless to say it was fun, but a little crazy. On Saturday, I went to play golf (Phil, Rob, and Brian were in my foursome) and Addi and Christi met Lena and Kelly in the park, along with all the kids. I came home and chatted with Christi and Tracia while Addi was asleep for her afternoon nap. Then we all went to dinner and had a grat time at Birkdale Village. Sunday is a lazy day, although I am flying to OH later this afternoon for business.

We have a busy week ahead. I will not be back until Monday night, and I have a class. We leave on Thursday morning for HI, and will be getting back on the 8th. On the 9th, I am hosting an ACC Tournament Challenge for some of the boys. It last all weekend. We will be busy, biut having a lot of fun.

I wanted to give an update on Addi's Cure Dinner. It really was a huge success. Addi's Cure cleared after expenses a little over $12,000 for the evening. We did have one really big donation, but even if we excluded that, we still would have been over $7,000. Our goal was $5,000. I think it was a lot of fun, and we should do things like that more often, not just for charity. Robin, Lena, Rachel, Anna, Lauren, Candace, and Amy really did a great job with this dinner. I will have to be honest, I did not do anything, it was Christi and all the girls that did such a great job. There were over 180 people there, so it was a huge sucess in creating awareness and raising money. Here is a money update:

2006, we rasied $75,236.06. We gave a check for $37,500 to Duke, and $37,736.06 went into the Addi's Cure growth account. The interest from this money will be swept at the end of the year and will be given to Duke as well.
2007, so far this year we have rasied $21,405.57. At the end of the year, we will give half of this to Duke and the rest will go into the Addi's Cure account.

I also thought it may be wise to discuss our goals for Addi's Cure again. We would like to have $1,000,000 in the Addi's Cure account earning interest for cancer research. I know this is a lofty goal, but i think we can do it over time. If we get to this point, we will have also given $1,000,000 as well. (Half and Half formula.) Imagine, a small charity like us would have given almost half of what the US goverment gave in 2005 total. (2.1 million) That is a shame, but more the reason why we have to give. Everyone has done such a great job.

Masters update - I will finish in April. My final paper will be on Addi's Cure. I will keep you posted.

Last but not least, I wanted to give an update on my condition. As Christi posted earlier, I did have some growth. Dr. Crawford did say my tumors are still lower than when I first enrolled at Duke, but he wanted to try find the right formula for me, and maybe Tarceva alone was not going to cut it. We added Avastin. I take it every three weeks at Duke, just like chemo. In fact it is a form of chemo. It took 90 minutes the first time, but I took it very well. The next time they will give me the dose in 60 minutes. I feel the same and still have not felt bad. I am excited about this oppurtunity to see what this drug can do.

Wednesday, February 21, 2007

Hello to all, this is Christi. Bo and I want to apologize for not writing sooner, we have had a bunch of things happen in the last week. As we mentioned before we saw the doctor last Tuesday and when he eyeballed the scans everything appeared to be stable. When they went back and measured everything, it appears there has been some growth. The doctors called us on Friday with this information and requested we come up on Tuesday to talk about it a little more in depth and check out our options. Needless to say there was a little panic on Friday, but we truly believe still that we can fight this. Bo's cancer, since it isn't one large mass but more like rice scattered throughout his lungs, is harder to measure. That isn't saying his cancer isn't growing that is saying there is a possibility that this could be something else. Not quite sure what I would want it to be, but knowing as with any cancer nothing is set in stone. If his cancer can find a way to grow, then we just have to find another way to make it stop. We are trying another drug called Avastin. It has always been an option for us, we have just been waiting until the right time to try it. Bo is in WI right now, but he will talk more about this. I know this is huge to just put out there all the sudden, but do understand that we all are all right. We are going to keep fighting. Bo is still feeling good, he has never felt bad, they keep telling us all this stuff is happening, we think they might be crazy. Just kidding, not funny I know. But sometimes everyting is just a little to real.
On another note, we had our first Addi's Cure fundraiser Monday night. IT WAS SUCH A SUCCESS! Thank you everyone for coming and supporting us, we are honored to know and meet such wonderful and generous people. (I don't want to steal Bo's thunder, so he will write about this also)
Everyone take care, please know that we all Bo, Addi and myself are doing alright. But if you want to do something, please keep praying.
Love you all

Wednesday, February 14, 2007

I just wanted to post quickly, for it is early, that everything with the doctor went well yesterday. Everything is still stable and the Tarceva is working! I am still coughing a little, but they truly believe that the cough in my chest is from a cold with this winter weather. Christi thinks I need to wear a coat more often, which I probably do. We met with Bridget from the department that raises funds for Duke, and they have published us in their quarterly letter. I will see if Christi can find the link to it to post on the website. They also have asked me to speak at a conference in May about my story and Addi's Cure. I will present to some very important and influential people with Dr. Crawford.
On a sadder note Christi, Brian, Jennifer, Kristen and I went to the UNC Game against Virginia Tech last night, and UNC lost in overtime. Thanks to a great man, Scott, who got us tickets in the box seats. The game was fun, but the outcome was not. I still think they have a good chance of winning it all this year.
Also Happy Valentine's Day to my two girls. I love you both!

Friday, February 09, 2007

Just a quick update on Addi's Cure donations:

Jim Lober
Jim Anderson
Ann Arbor
Steve Neperud
Sissy Parks
Bob Axelrod

I will have a total soon, but we are doing really well for the start of 2007. Thanks to everyone!

I just came back from Flordia and the Allianz Championship. This is a senior tour event. I played golf twice, once at Boca Beach Club, and once in the pro am at Broken Sound Golf Club. It was a lot of fun. Phil went with me as well. I played in the pro am with Craig Stadler, and he was really nice. We had a blast. We did come in the top 10, but we did not win. I am glad to get back and see Addi and Christi.

Thursday, February 08, 2007

Hello everyone, Christi and Addi here just hanging out missing Dad. There really isn't much to report here. Addi is obsessed with her cowgirl hat, she insists on wearing it sideways. (Which is quite funny to see) And I am working on gettting Addi's Cure dinner sold out! We are getting closer, but don't be surprised if I come knocking on everyone's door. Just so everyone knows we do have to collect the money up front because it is a dinner and we need a better count on food. Thank you so much for everyone planning on attending it should be a great time with good food and music.
See you all there

Monday, February 05, 2007

Latest Donations to Addi's Cure:

David Weidinger
Jason Klingel
David Vornwald
Stephanie Temple
Kestler Financial Group
Juan Butler
Kathryn Brenny
Terri Mayhew
Yvonne Bess
Brian Peterson
Sabrina Smith
Mike Rodgers
Ruth Hahn

These are for 2007 so far. I also wanted to announce that Addi's Cure is having a dinner in Cornelius on Feb 19, 2007. If you are interested in coming, please email info@addiscure.org for detail. It is $50.00 per person, and the venue is Mia Famigia, a great restuarant. It should be a lot of fun and of course for a good cause!

Sad news: There was a little boy mention in the comments on this blog. Here is an update - I just wanted to update everyone on little Sam Keziah that I had listed on your site. He passed away Friday morning with his mother holding him tight. Please be in prayer for the whole Keziah family as they deal with their loss. Again, if you would like to leave a message for the family their web site is: www.caringbridge.org/visit

This is why we need to fight these things. It really effects little kids and it is not fair....

Sunday, February 04, 2007

Super Bowl Sunday! It is here at last. Last night we had FIG's Celebration for the 2006 year end. It was a lot of fun and I think people really liked their bonus checks! We are really lucky to have such great employees.

Tonight we are having a Super Bowl get together and looking for the Colts to win. If you are a Bears fan, sorry.

Next week I am off the The Allianz Championship down in Boca. Looking forward to it. Going to get to play golf with Phil and Eric, and see a lot of people I know.

I am almost done with my masters. It has been a lot of work, but I have learned a lot. I will finish up mid April, so I am looking forward to that. My last project is actually on Addi's Cure, so it will be fun. See you soon!

Thursday, February 01, 2007

We have snow!