Sunday, December 02, 2007

I hope everyone had a great weekend. It was a fun week at work, and there is a lot that is happening. This is a really big time for us.

This weekend we went to go see Santa at Interstate Motorcycles. This is the motorcycle group that raised money for Addi's Cure with a Poker Run. They did such a great job and raised a lot of money. I hit some golf balls and played with Addi. Christi and Addi have been seeing Santa all over the place. Addi is really excited about this season.

Update on Suzi - Someone asked me to update everyone on Suzi. She sent me an email today and she is doing ok from what I understand. She is starting radiation on Monday again and I am so glad. She is having some trouble but I hope that it will get better for her. She thanks everyone for the prayers and thoughts. She needs more! I want to issue a challenge for you readers - send a $5 donation to Addi's Cure and in the memo section, put Suzi. Let her know she is being thought of.... See how I am always looking for an angle!

Addi's Cure is winding up our first full calendar year. This year has been awesome. We have raised awareness and money, and I want to do more. Please help us spread the word about lung cancer and funding. They do not have to send $$ to Addi's Cure, but send some somewhere. There are some many good causes, get into one and give your time as well. Remember the girls from Touch a Truck? Awesome ladies....

I would like you to say a prayer tonight for a sweet little girl. McKenna Johnson died this week. She was 10 years old and lost her battle with cancer. Please say a prayer for her family and for her. I am sure she is in Heaven and in no pain, and playing like a 10 year old should. Cancer SUCKS! Here is an entry from her blog:

Saturday, December 1, 2007 10:32 AM CST
Dear McKenna,We are so proud of you! From the moment you were born, you brought us so much joy, and love. You were such a happy baby and we loved you from the first instant we found out we were going to have another child. You were such a happy baby, and you were our first little girl. So precious and sweet and you were ALWAYS in pink.When we first heard the words, “Your daughter has cancer”, I thought our worlds were coming to an end. I had never felt that kind of pain, desperation, fear and anguish. How could this be? Such a perfect, sweet, innocent little girl….diagnosed with cancer at only 2 years old? We wished we could take your place. We would have given anything to have it be one of us, not you, our child. In those early years, we watched as you suffered through painful procedures and many treatments. You were stuck in the hospital countless times and endured chemotherapy, radiation and a bone marrow transplant. During it all, you remained happy and you would tell us not to worry and not to cry. Everything was going to be okay. You made the nurses, doctors, and staff fall in love with you. You had so many of them just eating out of the palm of your hand! You’d walk the halls of the hospital, tethered to your pole, with your cute little slippers on and sometimes, sunglasses or purses or hats. Always so stylish and cute and sassy! You were the brightest of angels, even back then!Following the successful BMT, you remained healthy for 5 years and 2 months. We are so thankful for all that we got to do with you. You showered us with so much love and you, soaked in and basked in, all of ours. You grew into such a beautiful, healthy young lady and we will never forget all the wonderful, special times we spent with you. We will never forget your spunk and your attitude, your humor and sarcastic comments. You were sassy and stubborn, but also sweet and loving to the core. You were such a mother hen. You loved babies and small children and would play for endless hours at Nana’s with all the babies in her daycare, holding them, playing with them and showering them with your attention and affection. When you were diagnosed this February, we were all crushed. We were all a little older, and wiser and so very, very scared of the road you would need to travel down. You helped your teacher tell your class that you had cancer and wanted to be able to answer any questions to your classmates. Such a fearless little girl! We watched as you took it all in stride and bravely went through all the new treatments. The lung surgery and the chest tubes in June, were the most painful procedures you had ever had. I cried and cried during the times you would get to finally rest and sleep, for all the pain that you had to endure. Tom our neighbor, remembers that shortly after your surgery, you were RUNNING and playing Ships across the Ocean, at their house and when you were getting tired, you said to Tom, “Tom, can you carry me? I just had part of my lung removed!”. I will NEVER forget that story. It is so you!During your BMT this August, we once again watched as you suffered. There was so many horrible side effects to your chemo. Nausea, vomiting, GVHD and all the horrible things that go with that. We watched as the strength was sucked out of your body, but never the spunk and your spirit. You fought so hard and you made it! You got to come home for 3 weeks!!! Home at last! We watched as you quietly, soaked it all in. You were so content to just sit or lay on the couch and watch your brother and sister in whatever they were doing. You didn’t have the strength or stamina to want to do much, but you were still so happy to be home with your family. You got to pick out your own little puppy, your loving little girl Emmie, and you bought her with your own money. She made you so happy and we are so glad you got a chance to do this, even if you really only got to enjoy her for 2 weeks. We will never regret the decision to let you have your own puppy and so grateful for the extra smiles it gave you. When we were told you had a virus…RSV, we really thought nothing of it. So what? Big Deal! Our McKenna is so strong, nothing can stop her, is all we so blindly were thinking. Never did we think it would devastate and destroy your lungs the way it did. I can’t even explain the pain that we felt as we watched you struggle to breathe. When you needed to be intubated and put on a breathing machine, I asked if you were scared and you said no. Always so brave! We were with you every day at the hospital, your entire family would take turns coming to visit you. We always thought you were going to wake up and couldn’t wait to see your eyes open and your see your beautiful smile. We wanted to hear your sweet voice again so badly. It wasn’t meant to be. You had to leave us on Tuesday. You had to go. Your body was so tired and worn out and it had suffered so long and hard. We knew it when we saw you that morning. It was over, you were done fighting, and we were telling you it was okay. It was your time to go fly, sing and dance with the angels. We understood that, finally, and we were ready to let you go.You left us, your entire family together, in your hospital room, surrounding you with our love. You are so brave, strong and courageous and we will never forget the lessons you have taught us. WE will cherish everything we had with you and you will be with all of us in our hearts forever and ever. You were the best little sister to Kalen, and the best big sister to Jadyn that you could possibly be. They are both so proud of you and will forever miss their sister. They are glad that you are now in heaven and cancer free. They both know that you are busy with all the angels, but know that you will hear them when they talk to you. They LOVE YOU!Mommy and Daddy are going to miss you forever. Your absence has left this family with a void as big as the Grand Canyon, and we are going to have to learn to live with it. You will always be with us and we are so blessed to have had you for as long as we did….we know that and we know that you are in a better place, free of pain and suffering. That is what gives us great comfort at this time!You changed lives baby girl! You inspired and touched so many people’s hearts! You lived life to the fullest and packed in an entire lifetime in just 10 short years. You are AMAZING and we will always carry your spirit in our hearts as we continue on here on earth. We will see you again princess McKenna….in every pink sunset, rainbow and twinkling star. We will know you are watching over our family for the rest of our lives and when we get to heaven, we’ll be able to hold you and laugh with you again! For now we will just continue to love you and remember you and miss you with all our might!See you later Boo Boo McFoo!!!

From McKenna:

Brick Wall, WaterfallDaddy thinks He’s got it all
But he don’t, cuz I do!
So, Boom with that attitudeBoom with that attitude!
Peace, Punch, Captain CrunchI’ve got something you can’t touch!
Bang Bang choo choo trainWind me up, I’ll do my thang!
I know Karate, I know Kung FuMess with me…I’ll mess with you….FOO!!!


Love McKenna!

4 comments:

Anonymous said...

Thank you for the update on Suzy! I am happy to hear she is still fighting the fight! The blog breaks my heart - what a strong little girl - I can't imagine losing a child!

Tracy said...

Thank you so much for sharing this beautiful story about McKenna. She was an amazing little girl. Another reminder to us all parents that every day with our children is such a gift.
So glad you are feeling well Bo and enjoying the holiday season. You deserve it!

Anonymous said...

Thank you for sharing McKenna's story. I went to her Caring Bridge website and read all of the posts (dating back 6-7 years). I can't even begin to imagine what her parents and siblings have gone through all of these years. What an amazing little girl and family! Her story serves as a reminder to cherish every minute you have with your family and don't get hung up on the small stuff. Glad you are feeling well!

Anonymous said...

McKenna's blog breaks my heart. I've often thought about your mom. Even though you are much older than McKenna, I'm sure you are still your mom's baby--as my son will always be my baby. Tell your mom I pray for her too! She is very blessed, as McKenna's parents, to have such a strong child who is changing lives.