Tuesday, July 29, 2008

Good Evening Friends - I unfortunately do not have really anything new to post tonight. This morning they did another biopsy and we will get the results of that back soon. From a visual aspect another doctor thinks Bo's lungs are looking good. He stated that the sluggishness in Bo's diaphragm could be the main culprit to the accumulation of CO2 in Bo's lungs after an extended period of time. I didn't get to speak with the doctor personally (as planned) but I did get to speak with the transplant coordinator and she reiterated what I just mentioned. After speaking with numerous people yesterday, a force of people came forward to help in the rehab of Bo's diaphragm. So Bo is going to work, work and work to get that stronger this next couple of weeks. They are hopefully going to start weaning Bo back off the vent tomorrow. I pray for Bo's strength to endure this yet another time. There is almost nothing harder for him to do and the fact that he has done this so many times is a testament to his strength and fight to live. I just wish sometimes he could get a break and it would be easier. Tomorrow I will sit with him and encourage all day long. We have a mantra we say to help calm our nerves "I Love Addi, I Love Addi, I Love Addi" It always seems to help.
I did get a great visit today. Mr. Fuller came to check on me and some other friends, and he couldn't have come at a better time. I was started to get frustrated with our vicious circle and there was that red St. Louis hat with arms wide open. It is selfish how quickly and easily I feel into them. I hope to have the strength and courage that he has. The Fuller family has been through so much and yet again unselfishly they come to the hospital to check on us still fighting. We talk about our adversities for the day and get the honest reminder that they would give about anything to be there too.
Everyone rest up because "We Love Addi" and we will keep fighting.
Love
Christi, Addi and Bo
PS - I am trying to watch the special, The Last Lecture, Wow what a hard one to get through. It hits a little close to home...what an amazing family.

9 comments:

Anonymous said...

You guys are an amazing family too! Keep up the fight...you will beat this!! The kids and I will be in town on Monday! Looking forward to seeing you and spending time with Addi! We love you!

The Faunces

Anonymous said...

Christi and Bo,
This spring I heard him give "The Last Lecture" again on Oprah. The one thing I will always remember is that he said he gave that lecture for his three children. He was a very remarkable man.
We will continue to have good thoughts for you and Bo and continue to send you love, hugs, prayers, and of course, laughter. I think I will add patience. I know you and Bo are tired of being in what seems a circle. Hovever, each time a little progress is made. Remember, baby steps!
I am so glad Mr. Fuller came by to see you. He has been a source of strenght for both of you. I am sure he is glad to feel needed.
Take care and know we think of you both everyday and wish we could be there with you.
Stay strong and remember hope always floats to the top!
Love,
Aunt Mary and Uncle Jeff

Anonymous said...

Christi, I cannot begin to fathom the exhaustion and frustration that you and Bo are enduring. Bo needs you more than ever. Thank God you and Addi are there for him. Please tell Bo that I love him. You WILL get through this!
MitchyB

Anonymous said...

Randy and I were talking about we wish we could walk in your shoes for one day so that you and Bo could remember what "normal" feels like right now. Continue to have strength and patience to move forward. Tell Bo he needs to work on that diaphragm so that he can blow bubbles with Addi and blow up balloons for the next celebration in your lives.
Take care!
Love,
The Glidewell Clan

Anonymous said...

Take it one breathe at a time...with each one know that you are closer to your goal. We love you Bo and that's our cheer! You have two beautiful ladies by your side to motivate you, you can't go wrong. Keep fighting buddy, we know you can do it!!

Ken & Mystina said...

Dear Bo and Christi~
We are praying for you. We can not fathom the road that you are walking right now. But we can and will continue to lift you up. Remember these verses:

Psalms 46:1
God is our refuge and strength, a very present help in trouble.

Isaiah 40:31
But those who wait on the LORD
Shall renew their strength;
They shall mount up with wings like eagles,
They shall run and not be weary, They shall walk and not faint.

Blessings,
Ken & Mystina Zummach

Anonymous said...

Christi - I watched the special last night on Randy too. Got choked up almost through the whole thing! What an amazing testament to life and will and courage!!! Remimded me of YOU and Bo and Addie(and I have never even met you).

Hang in there -everyone's still praying for you guys! I just truly believe you will get through this, maybe slower than you hoped- but it WILL happen. :)

Amy Williams

Anonymous said...

We All Love Addi. Every little breath helps to get that diaphram stronger. Tell Bo I'm comming to the Triangle in Oct so unless he wants me to come harass him he better be back in Charlotte.

Jenn in CA

PS I really do want to see you all just want him out of the hospital.

Candace said...

We think of you guys daily and pray for you always. We miss you all!!!!
All our love,
Candace, Connor and Walker