Thursday, June 26, 2008

Someone really needs to get me a thesaurus...Today was another, dare I say Amazing day. That doesn't quite put it into the right words, but I will stick with it. He once again started his day at 5:00, by 6:30 he was on another trach trial for 4 1/2 hours...seriously Wow! Then he walked 2 times before 11:00. At 11:00 they did the 1st of many routine biopsy's of the lungs to check for rejection. I know saying those words will panic us all (it seems way to early to be talking about it) but do know that there is many different immune suppressant that can be given for rejection. I compare it chemotherapy, it might take the doctors a couple different tries to get the right formula to keep his lungs at peace. (I will not panic if they didn't get it right the first time, so no one else is allowed to panic either)
So the biopsy was done at 11:00 then Bo rested some. Walked again another 400 feet and was on another trach trial for 5 hours! That is almost 10 hours today! The nurse expects him to rest well this evening and start early tomorrow. Today we also removed all additional medicines (except what he will be taking on a daily basis) We remove his A-line (measured his blood pressure internally) and tomorrow we will hopefully remove the rest of his draining tubes. That means when he walks tomorrow he will not have to take his IV poll with him. Just me and him (and the nurse for a little while longer)
Today Bo also asked me what he had to do to "get out of here" I almost cried. But to let everyone know, he must be off the vent 48 hours to get out of ICU and then he must walk 20 laps (not quite sure how far that will be) to get out of the hospital. Then we will have rehab for 23 times. It is amazing that I can even begin to mention my previous statements. I know it will probably take a couple weeks, but I cannot wait. Patience and he will be at the "summer home" before we know it!
Love
Christi, Addi and Bo

19 comments:

mindy said...

Congrats this is great news! Keep up the good work all of you. Thinking about you every day!
Mindy

Anonymous said...

All wonderful news!!! The power of prayer and one stong hearted individual and his support team. Keep up the great work and it will be in no time he will be out of there.
Take care,

Robert M.

Anonymous said...

I have chills when I read this. What other words do you need but amazing? I did a quick search for you though and you've got lots of options " astonishing, astounding, fantastic, fantastical, incredible, marvelous, miraculous, phenomenal, prodigious, stupendous, unbelievable, wonderful, wondrous: They are all suitable for this situation!!

Take care, Kristen

Anonymous said...

That is fantastic! We are so proud of you all! Shawn, Amy, Jacob and Logan

Anonymous said...

Tears of joy,thanksgiving, and love, and we are speechless and words are so inadaquate at this time. Just feelings.Aunt Marilyn and Uncle Leon

Anonymous said...

Praise the Lord! What great news and progress. We are praying for the test results to be good news.

Ed and Lib Connell

Anonymous said...

Christi, Bo, and Addi,
Wow, Bo is really working hard. I know he wants to get to living his life again, but help him to remember he has to give himself and his lungs time to adjust and to heal. The lungs need to become familiar and comfortable with their new home. I can't believe how hard Bo is working. All of you are amazing!!! Stay strong and feel all the love and hope that are coming your way every day. You are all very loved.
The journey continues.
Love,
Aunt Mary and Uncle Jeff

Robo Boogie said...

Really this brought tears to my eyes. How amazing the human body is and your perseverance.

Anonymous said...

That is awesome.. Tell Bo Brenda and Keyara are very happy for him. Tell him to keep it up and he will be out of the hospital before he knows it.
Brenda

Anonymous said...

Christi, Bo, and Addi,
I have been following your story closely, and I would love to write another follow-up article on your remarkable journey and your continued work with Addi's Cure for The Herald. I talked to Tucker, and he'd love for me to do it, if you both are comfortable with it. You both are truly inspriing members of the community, and this is certainly one that will touch the hearts of many and hopefully bring attention to your cause. Let me know - darlene.schaefer@adelphia.net
Thanks,
Darlene Schaefer

Anonymous said...

I have tears dripping down my face-tears of happiness. There is REAL very REAL progress. Bo- you are something else!

Love you all,
MitchyB

Anonymous said...

I like Kristen's list!!! Fantastic and phenomenal Bo! There were some tears in the office this morning, but they are all tears of real joy. You have come so far and will continue to do great things. Christi you are just absolutely amazing and tell Addi girl hi for all of us, we miss the office cheerleader!!!

Anonymous said...

Hey Bo and Christi,
Praise Jesus! Way to go Buddy!!
So excited to hear the good news of so much healing and so quickly. Bo, probably doesnt seem that way to you, but how amazing you are!!
Take care all, Leigh Ann

Anonymous said...

Tears of joy in Omaha!!! It is so wonderful to hear that your man is coming back to you and that things are going so well for him. We all know what a hard battle it has been and are so grateful that you will soon have him back in your home. I know that he can't wait to be able to do the little things again...sit on the couch with his arm around you while he watches golf, get on the floor and play with Addi... etc All those everyday things that we all take for granted.

Way to go BO! Keep it up. You are awesome!

L&T

Anonymous said...

We are so very proud of you all. I am in awe of your strength and determination. 10 hours off the trach is increadible!!

Karen Geiger and family

Anonymous said...

I came by for my daily check-in and am so happy to hear your report Christi! BO--You ROCK!!! Tell Bo, he also has to get really mean and nasty to the staff and they will move him out of the ICU much faster! :0) If he continues to be so sweet and funny they'll never let him go!!!
Hang in there and know that you have so many people out here praying for you! Cancer SUCKS!
Love,
Krista
www.caringbridge.org/mn/mckenna

Anonymous said...

Hi Bo,
The Odds Makers in Las Vegas are betting on a full recovery very soon. Lou and I check your blog several times a day for updates. Thank you soooo much Christi for keeping all of the people who have you and Bo and Addi in their prayers in the loop. I think the baby steps have turned into giant steps. YEAH!!!!!!!!
Hugs,
Shelly

Anonymous said...

Congrats to Bo!! Terrific news...you both are complete inspirations! Keep on lapping Bo!
Angie

Anonymous said...

Amazing the word for Amazing People. What a ray of love and hope.