Well we made it through our first night in "step down" Bo was a little apprehensive, so Addi went and stayed at her friend Evelyn's house and I went to keep Bo company. As usually Bo handled everything great and is moving forward to tackling the next hiccups. Part of his stomach problem is that he has a clog in his feeding tube, hopefully that will be corrected today. (with the holiday everything is short staffed and I am not sure what is getting done) Then next week we will have to procedure for his vocal cords. (I think this is the most frustrating for Bo, not being able to properly express his needs. We are getting by right now, but I know he would like to talk) With all that being said, we expect a quiet weekend with nothing really changing except for him walking more and more.
I will post more tonight and some great information about the Addi's Cure event being hosted in Lawrence Kansas on July 18th. We certainly hoped and planned to be back for this event, but that is still up in the air for Addi and I. We would greatly appreciate any help and support we can get at the date gets closer and closer. I will attach the flyer tonight when I get on the proper computer. My family and friends have been working really hard on this event (considering we have been AWOL for the past month) They have some great KU items being donated and if anyone else has anything please let me know. More tonight....
Thanks for all the help and support
Love
Christi, Addi and Bo