Hello to All - Life at home is going well. Bo is working on getting "normal", but thankfully he is slowing down to do it. I think those first couple days he was running in adrenaline and that carried him through and then he hit a wall. I hope we are climbing back out and getting some strength back. This time we will do it slow and steady.
Tomorrow is really an all day doctor day. First, Addi is coming with us. I love my daughter, but I was hoping she could play with friends while we went to Duke. She is coming not because we do not have great friends that wouldn't take her, but because she asked. She has been asking a lot lately why did she have to play with friends and family while Mommy and Daddy saw the doctor. Why can't she go? There have been tears also, so like always, Addi comes first and she comes with. Heck you bring a 3 year old in to talk with the doctors and somehow things go a little faster. This might work in our benefit. Plus they all know her anyway, why not again.
On to our day, first we do the pulmonary function testings, blood testing and x-ray. Then to the "wrap" doctor to check that our and "hopefully" remove our last tube, the GJ tube Bo at one time was being fed through. Hopefully that will simply be pulled out. Then to revisit with the Ear, Nose and Throat doctor about the vocal cords. I think things are fine there, so we will check that our as well. Maybe grab a little lunch and back to Dr. Snyder the Pulmonologist, should be our last time seeing her, she is due any day now. After that we are on our way back home.
Wish us luck, We (I) think we might need it!
Love to All
Christi, Bo and Addi