Sunday, May 24, 2009

Thank You, Thank You, Thank You. I am going to take our news in a positive way and keep partying it up this summer. We just spoke with our doctors and they have decided to wait and do another MRI at the end of the summer. Dr. Crawford spoke with Dr. Friedman (the surgeon) and Dr. Friedman isn't convinced this is cancer. He said the "spot" is so small he would like to wait and give it another two months to see if there is any change to help their determination of what this is. It would be a risky procedure and before they put Bo through it, and with everything else he has gone through, they would like to wait.
They did apologize for flip flopping, but I assured them that if they are putting off brain surgery, I am okay with that. So we wait some more and pray, pray, pray that the "spot" leaves. The way I figure all our prayers have delayed this surgery, so a little more time and this will go away on it's own. Somehow I need to try and find a way to get Bo to meditate and visualize this leaving...
Love to All - Enjoy your weekend
Christi, Bo and Addi
PS - please say a few prayers for our friend Mindy's Dad. He was recently diagnosed with colon cancer and they are going through the beginning phases of how to deal with hearing the "cancer" word. I do hope they will find their strength quickly, find the best method to fight this, and realize cancer will not get them down. If you remember my Dad was diagnosed with color cancer 4 months after Bo was diagnosed with lung cancer, no one is slowing him down! Love you all...

Tuesday, May 19, 2009

Just a quick note to let you know that we do not have a date yet. Dr. Friedman is out of town until tomorrow and he is going to talk with Dr. Crawford before we schedule. We "should" hear by the end of the week.
We will keep you posted.
Love to All
Christi, Bo and Addi

Friday, May 15, 2009

Hello to All - I hope you are enjoying the beginnings of summer before things get crazy hot. Well things never get to crazy hot in NC, some days but in general it is all good.
Sorry it has taken so long to post, but we just heard back from the doctors this week and needless to say we needed a little time to process. (plus most our family is on a trip to the Dominican that our doctors wouldn't let us go on) It looks like Bo will be having Brain Surgery this summer. We haven't set the date yet, we are still waiting to hear. Bo is requesting June, late June, but we are unsure if time is of the essence or what. It is our understanding that our team of doctors got together to discuss the "spot" and determined the only real way to figure out what this is, is surgery. All roads would end this way, so I guess let's skip everything else and just "Get er done." (that was for Curtis) So you see now why we haven't phoned down there and mentioned over the phone, let's give them a little more time to enjoy themselves.
The procedure will be done a Duke, I guess this is the only way we got to be on every floor of the hospital there, lucky us. Dr. Freidman, who performed Ted Kennedy's procedure has signed up to take Bo (and myself) on. Seriously Bo is more agreeable (go figure) than I am most of the time. (He is sedated, (I might take that route this time) I am too nosey, oh well. We are optimistic that this will fix the problem and then we can go on living our lives. Disney here we come!
We will let you know when our "procedure" will be performed. Let's pray Bo can give us an uneventful one. I know I am praying for that. I also pray that Addi will not spend the summer in a hotel again. She is such a trooper, but you always want the best for them. She really will start to think the summer house is our summer house before long.
Love to All
Christi, Bo and Addi

Friday, May 08, 2009





Finally some pictures...Easter and whatever (she loves corn)...

Love to All

Christi, Bo and Addi



Tuesday, May 05, 2009

Hello to all - We make it back from another day at Duke. (I hate long posts, love to talk, but hate long posts) We have a few things to figure out and we are trusting the doctors to make the right decisions. One of the "spots" is still suspicious. And with that I mean, they think it might be growing, they are unsure. You ask how can one of the top hospitals in the country but unsure...I know. Every time you get a scan the scanner gets different pictures from the time before. The first time, they saw the spot, but couldn't read it very well. The second time they felt like they got a better picture and the brain specialist wanted to investigate, but our oncologist (with the year Bo has had) felt comfortable waiting and seeing if it will leave on its own or not change. So they agreed to wait, as long as nothing changed. Well without the specialist looking at it, just the radiology department (which could be someone different every time) felt that it might have grown.
So you ask now what...first we pray then we differ to the doctors to make one of three possible choices. 1st decide isn't nothing (of course I am voting for that one) 2nd - determine radiation might work and go that route (hmmmm Bo losing more brain cells, I always said I could love him no matter what - unless he is stupid, dumb I cannot handle) or 3rd surgery. If brain surgery can be minor, this would be minor and would result in another hospital stay. This could be the only way we will definitely know what this "spot" is. So with all that being said, we have made no decisions on how to proceed on preventing BAC from coming back (we will handle this once the "spot" is taken care of...if possible)
I think I will write a new "Spot" Book. See Spot Run. See Spot Jump. See Spot Disappear. Goodbye Spot. I think today was a long day...
Love to All
Christi, Bo and Addi
PS - We have some big days to celebrate this year...just a reminder -
May 27th - 1st Transplant - I would forget this one altogether if I could
June 1st - 2nd Transplant 2008 - Bo diagnosed with Lung Cancer 2006
June 6, 2006 - 06/06/06 - Dr. Crawford and Susan confirmed cancer but became our angels (I knew on this day the world ended, but one something ends a new life begins and for that I am grateful, we found new friends, fell in love with old friends again and the power of friendship and prayers)

Monday, May 04, 2009

I am sure most of you in Kansas saw this article and are aware...but please pray for our dear friends, Red Dog and Beverly. They are fighting as I expected them to do and raising awareness about Prostrate Cancer. If you are in the Lawrence area this summer you should go and work out. I helped for many years and miss it so much now (so does my hips!)
Love to All
Christi, Bo and Addi

http://www2.ljworld.com/news/2009/apr/27/bracelets-available-support-dog-days-founder-help-/

Sunday, May 03, 2009

Another fabulous weekend down. The weather held off most of the weekend and we just hung out as a family. Some cleaning, getting some stuff done around the house, a lot of dress up and cleaning toys up and some Friday Night Movie Night.
This week we are off the Duke on Tuesday for another Brain MRI, this should hopefully be out last one as long for a while, as long as nothing changes. (We are praying for stable, but we will take gone as well) We will hopefully get to talk about future treatment plans for Bo and keeping the cancer away. All of that has been on hold waiting to get Bo back and fully functioning and also making sure there was nothing going on in that head of his...hahaha - I might need to check and make sure there is something in there. Funny I know.... The future treatment plan is exciting, but kind of like waiting for the transplant call. I am assuming this plan will go smoother and easier than transplant, but with Bo you never know. We are unsure of what path to take, how Bo will react to medicines or chemo if we go that route. I am sort of deferring to the doctors and dragging my feet. Lord knows I do not want to cancer to come back, but it feels like yesterday that I got to get me Bo back. Selfishly I want him for a little longer, but I would never chance that cancer coming back. So off we go to talk with the doctors.
Thanks for you love and support and I promise I will post of pictures of Addi soon - Easter - dress up and everything else she does.
Love to All
Christi, Bo and Addi
PS - if you are wondering what happened to Bo, "crack-book" I mean facebook...