Sometimes kids do the funniest things...
This is just a cute one from Valentine's Day
Tuesday, February 27, 2007
Sunday, February 25, 2007
Hello all. sorry for the delay in me writing. I hope everyone is doing well and keeping healthy. We had a great weekend here at the Johnson Household. Friday we had dinner at Phil and Lena's with 11 adults (minus Justin) and 9 kids. Needless to say it was fun, but a little crazy. On Saturday, I went to play golf (Phil, Rob, and Brian were in my foursome) and Addi and Christi met Lena and Kelly in the park, along with all the kids. I came home and chatted with Christi and Tracia while Addi was asleep for her afternoon nap. Then we all went to dinner and had a grat time at Birkdale Village. Sunday is a lazy day, although I am flying to OH later this afternoon for business.
We have a busy week ahead. I will not be back until Monday night, and I have a class. We leave on Thursday morning for HI, and will be getting back on the 8th. On the 9th, I am hosting an ACC Tournament Challenge for some of the boys. It last all weekend. We will be busy, biut having a lot of fun.
I wanted to give an update on Addi's Cure Dinner. It really was a huge success. Addi's Cure cleared after expenses a little over $12,000 for the evening. We did have one really big donation, but even if we excluded that, we still would have been over $7,000. Our goal was $5,000. I think it was a lot of fun, and we should do things like that more often, not just for charity. Robin, Lena, Rachel, Anna, Lauren, Candace, and Amy really did a great job with this dinner. I will have to be honest, I did not do anything, it was Christi and all the girls that did such a great job. There were over 180 people there, so it was a huge sucess in creating awareness and raising money. Here is a money update:
2006, we rasied $75,236.06. We gave a check for $37,500 to Duke, and $37,736.06 went into the Addi's Cure growth account. The interest from this money will be swept at the end of the year and will be given to Duke as well.
2007, so far this year we have rasied $21,405.57. At the end of the year, we will give half of this to Duke and the rest will go into the Addi's Cure account.
I also thought it may be wise to discuss our goals for Addi's Cure again. We would like to have $1,000,000 in the Addi's Cure account earning interest for cancer research. I know this is a lofty goal, but i think we can do it over time. If we get to this point, we will have also given $1,000,000 as well. (Half and Half formula.) Imagine, a small charity like us would have given almost half of what the US goverment gave in 2005 total. (2.1 million) That is a shame, but more the reason why we have to give. Everyone has done such a great job.
Masters update - I will finish in April. My final paper will be on Addi's Cure. I will keep you posted.
Last but not least, I wanted to give an update on my condition. As Christi posted earlier, I did have some growth. Dr. Crawford did say my tumors are still lower than when I first enrolled at Duke, but he wanted to try find the right formula for me, and maybe Tarceva alone was not going to cut it. We added Avastin. I take it every three weeks at Duke, just like chemo. In fact it is a form of chemo. It took 90 minutes the first time, but I took it very well. The next time they will give me the dose in 60 minutes. I feel the same and still have not felt bad. I am excited about this oppurtunity to see what this drug can do.
We have a busy week ahead. I will not be back until Monday night, and I have a class. We leave on Thursday morning for HI, and will be getting back on the 8th. On the 9th, I am hosting an ACC Tournament Challenge for some of the boys. It last all weekend. We will be busy, biut having a lot of fun.
I wanted to give an update on Addi's Cure Dinner. It really was a huge success. Addi's Cure cleared after expenses a little over $12,000 for the evening. We did have one really big donation, but even if we excluded that, we still would have been over $7,000. Our goal was $5,000. I think it was a lot of fun, and we should do things like that more often, not just for charity. Robin, Lena, Rachel, Anna, Lauren, Candace, and Amy really did a great job with this dinner. I will have to be honest, I did not do anything, it was Christi and all the girls that did such a great job. There were over 180 people there, so it was a huge sucess in creating awareness and raising money. Here is a money update:
2006, we rasied $75,236.06. We gave a check for $37,500 to Duke, and $37,736.06 went into the Addi's Cure growth account. The interest from this money will be swept at the end of the year and will be given to Duke as well.
2007, so far this year we have rasied $21,405.57. At the end of the year, we will give half of this to Duke and the rest will go into the Addi's Cure account.
I also thought it may be wise to discuss our goals for Addi's Cure again. We would like to have $1,000,000 in the Addi's Cure account earning interest for cancer research. I know this is a lofty goal, but i think we can do it over time. If we get to this point, we will have also given $1,000,000 as well. (Half and Half formula.) Imagine, a small charity like us would have given almost half of what the US goverment gave in 2005 total. (2.1 million) That is a shame, but more the reason why we have to give. Everyone has done such a great job.
Masters update - I will finish in April. My final paper will be on Addi's Cure. I will keep you posted.
Last but not least, I wanted to give an update on my condition. As Christi posted earlier, I did have some growth. Dr. Crawford did say my tumors are still lower than when I first enrolled at Duke, but he wanted to try find the right formula for me, and maybe Tarceva alone was not going to cut it. We added Avastin. I take it every three weeks at Duke, just like chemo. In fact it is a form of chemo. It took 90 minutes the first time, but I took it very well. The next time they will give me the dose in 60 minutes. I feel the same and still have not felt bad. I am excited about this oppurtunity to see what this drug can do.
Wednesday, February 21, 2007
Hello to all, this is Christi. Bo and I want to apologize for not writing sooner, we have had a bunch of things happen in the last week. As we mentioned before we saw the doctor last Tuesday and when he eyeballed the scans everything appeared to be stable. When they went back and measured everything, it appears there has been some growth. The doctors called us on Friday with this information and requested we come up on Tuesday to talk about it a little more in depth and check out our options. Needless to say there was a little panic on Friday, but we truly believe still that we can fight this. Bo's cancer, since it isn't one large mass but more like rice scattered throughout his lungs, is harder to measure. That isn't saying his cancer isn't growing that is saying there is a possibility that this could be something else. Not quite sure what I would want it to be, but knowing as with any cancer nothing is set in stone. If his cancer can find a way to grow, then we just have to find another way to make it stop. We are trying another drug called Avastin. It has always been an option for us, we have just been waiting until the right time to try it. Bo is in WI right now, but he will talk more about this. I know this is huge to just put out there all the sudden, but do understand that we all are all right. We are going to keep fighting. Bo is still feeling good, he has never felt bad, they keep telling us all this stuff is happening, we think they might be crazy. Just kidding, not funny I know. But sometimes everyting is just a little to real.
On another note, we had our first Addi's Cure fundraiser Monday night. IT WAS SUCH A SUCCESS! Thank you everyone for coming and supporting us, we are honored to know and meet such wonderful and generous people. (I don't want to steal Bo's thunder, so he will write about this also)
Everyone take care, please know that we all Bo, Addi and myself are doing alright. But if you want to do something, please keep praying.
Love you all
Christi
On another note, we had our first Addi's Cure fundraiser Monday night. IT WAS SUCH A SUCCESS! Thank you everyone for coming and supporting us, we are honored to know and meet such wonderful and generous people. (I don't want to steal Bo's thunder, so he will write about this also)
Everyone take care, please know that we all Bo, Addi and myself are doing alright. But if you want to do something, please keep praying.
Love you all
Christi
Wednesday, February 14, 2007
I just wanted to post quickly, for it is early, that everything with the doctor went well yesterday. Everything is still stable and the Tarceva is working! I am still coughing a little, but they truly believe that the cough in my chest is from a cold with this winter weather. Christi thinks I need to wear a coat more often, which I probably do. We met with Bridget from the department that raises funds for Duke, and they have published us in their quarterly letter. I will see if Christi can find the link to it to post on the website. They also have asked me to speak at a conference in May about my story and Addi's Cure. I will present to some very important and influential people with Dr. Crawford.
On a sadder note Christi, Brian, Jennifer, Kristen and I went to the UNC Game against Virginia Tech last night, and UNC lost in overtime. Thanks to a great man, Scott, who got us tickets in the box seats. The game was fun, but the outcome was not. I still think they have a good chance of winning it all this year.
Also Happy Valentine's Day to my two girls. I love you both!
On a sadder note Christi, Brian, Jennifer, Kristen and I went to the UNC Game against Virginia Tech last night, and UNC lost in overtime. Thanks to a great man, Scott, who got us tickets in the box seats. The game was fun, but the outcome was not. I still think they have a good chance of winning it all this year.
Also Happy Valentine's Day to my two girls. I love you both!
Friday, February 09, 2007
Just a quick update on Addi's Cure donations:
Jim Lober
Jim Anderson
Ann Arbor
Steve Neperud
Sissy Parks
Bob Axelrod
I will have a total soon, but we are doing really well for the start of 2007. Thanks to everyone!
I just came back from Flordia and the Allianz Championship. This is a senior tour event. I played golf twice, once at Boca Beach Club, and once in the pro am at Broken Sound Golf Club. It was a lot of fun. Phil went with me as well. I played in the pro am with Craig Stadler, and he was really nice. We had a blast. We did come in the top 10, but we did not win. I am glad to get back and see Addi and Christi.
Jim Lober
Jim Anderson
Ann Arbor
Steve Neperud
Sissy Parks
Bob Axelrod
I will have a total soon, but we are doing really well for the start of 2007. Thanks to everyone!
I just came back from Flordia and the Allianz Championship. This is a senior tour event. I played golf twice, once at Boca Beach Club, and once in the pro am at Broken Sound Golf Club. It was a lot of fun. Phil went with me as well. I played in the pro am with Craig Stadler, and he was really nice. We had a blast. We did come in the top 10, but we did not win. I am glad to get back and see Addi and Christi.
Thursday, February 08, 2007
Hello everyone, Christi and Addi here just hanging out missing Dad. There really isn't much to report here. Addi is obsessed with her cowgirl hat, she insists on wearing it sideways. (Which is quite funny to see) And I am working on gettting Addi's Cure dinner sold out! We are getting closer, but don't be surprised if I come knocking on everyone's door. Just so everyone knows we do have to collect the money up front because it is a dinner and we need a better count on food. Thank you so much for everyone planning on attending it should be a great time with good food and music.
See you all there
Christi
See you all there
Christi
Monday, February 05, 2007
Latest Donations to Addi's Cure:
David Weidinger
Jason Klingel
David Vornwald
Stephanie Temple
Kestler Financial Group
Juan Butler
Kathryn Brenny
Terri Mayhew
Yvonne Bess
Brian Peterson
Sabrina Smith
Mike Rodgers
Ruth Hahn
These are for 2007 so far. I also wanted to announce that Addi's Cure is having a dinner in Cornelius on Feb 19, 2007. If you are interested in coming, please email info@addiscure.org for detail. It is $50.00 per person, and the venue is Mia Famigia, a great restuarant. It should be a lot of fun and of course for a good cause!
Sad news: There was a little boy mention in the comments on this blog. Here is an update - I just wanted to update everyone on little Sam Keziah that I had listed on your site. He passed away Friday morning with his mother holding him tight. Please be in prayer for the whole Keziah family as they deal with their loss. Again, if you would like to leave a message for the family their web site is: www.caringbridge.org/visit
This is why we need to fight these things. It really effects little kids and it is not fair....
David Weidinger
Jason Klingel
David Vornwald
Stephanie Temple
Kestler Financial Group
Juan Butler
Kathryn Brenny
Terri Mayhew
Yvonne Bess
Brian Peterson
Sabrina Smith
Mike Rodgers
Ruth Hahn
These are for 2007 so far. I also wanted to announce that Addi's Cure is having a dinner in Cornelius on Feb 19, 2007. If you are interested in coming, please email info@addiscure.org for detail. It is $50.00 per person, and the venue is Mia Famigia, a great restuarant. It should be a lot of fun and of course for a good cause!
Sad news: There was a little boy mention in the comments on this blog. Here is an update - I just wanted to update everyone on little Sam Keziah that I had listed on your site. He passed away Friday morning with his mother holding him tight. Please be in prayer for the whole Keziah family as they deal with their loss. Again, if you would like to leave a message for the family their web site is: www.caringbridge.org/visit
This is why we need to fight these things. It really effects little kids and it is not fair....
Sunday, February 04, 2007
Super Bowl Sunday! It is here at last. Last night we had FIG's Celebration for the 2006 year end. It was a lot of fun and I think people really liked their bonus checks! We are really lucky to have such great employees.
Tonight we are having a Super Bowl get together and looking for the Colts to win. If you are a Bears fan, sorry.
Next week I am off the The Allianz Championship down in Boca. Looking forward to it. Going to get to play golf with Phil and Eric, and see a lot of people I know.
I am almost done with my masters. It has been a lot of work, but I have learned a lot. I will finish up mid April, so I am looking forward to that. My last project is actually on Addi's Cure, so it will be fun. See you soon!
Tonight we are having a Super Bowl get together and looking for the Colts to win. If you are a Bears fan, sorry.
Next week I am off the The Allianz Championship down in Boca. Looking forward to it. Going to get to play golf with Phil and Eric, and see a lot of people I know.
I am almost done with my masters. It has been a lot of work, but I have learned a lot. I will finish up mid April, so I am looking forward to that. My last project is actually on Addi's Cure, so it will be fun. See you soon!
Thursday, February 01, 2007
Tuesday, January 30, 2007
Sorry for the delay in posting, they have changed the blogger website and it took me a while to figure things out. (This is Christi) We all made it back from Arizona. The trip was a good time, the weather was a little chilly for AZ, but not to cold for Bo and golf or Miss Addi in a heated pool. I do think our little girl might be a swimmer. She has no fear in water, she is already dunking her head. It looks like swimming lessons for me and her this summer.
We have had some exciting things happen when we were out of town. FIG won an award at the dinner we were at in AZ. It was such a big deal and a friend of ours presented it to us, so that was special. Eric said some wonderful things about FIG, Bill, Jo and Bo even a little about me that brought tears to my eyes. He truly is a special person and good with words. He made me so proud of Bo and his fight and desire to persevere is a tough situation. He spoke of FIG and Bo's passion for life. It was really special.
Another that is real special is one of the local papers wrote an article about Addi's Cure and the funds we are trying to raise. Here is the Linc to the article, Darlene did a wonderful job.
http://www.huntersvilleherald.com/articles/2007/01/26/news/local/local01.txt
Also I think we are finalizing the plans for our first Addi's Cure event. It will be a dinner here in Cornelius at one of the local restaurants. How exciting, I can't wait. Finally we can get donations and give something back, hopefully it will be a good time!
Everyone take care
Christi
PS we are all feeling good and excited for 2007
We have had some exciting things happen when we were out of town. FIG won an award at the dinner we were at in AZ. It was such a big deal and a friend of ours presented it to us, so that was special. Eric said some wonderful things about FIG, Bill, Jo and Bo even a little about me that brought tears to my eyes. He truly is a special person and good with words. He made me so proud of Bo and his fight and desire to persevere is a tough situation. He spoke of FIG and Bo's passion for life. It was really special.
Another that is real special is one of the local papers wrote an article about Addi's Cure and the funds we are trying to raise. Here is the Linc to the article, Darlene did a wonderful job.
http://www.huntersvilleherald.com/articles/2007/01/26/news/local/local01.txt
Also I think we are finalizing the plans for our first Addi's Cure event. It will be a dinner here in Cornelius at one of the local restaurants. How exciting, I can't wait. Finally we can get donations and give something back, hopefully it will be a good time!
Everyone take care
Christi
PS we are all feeling good and excited for 2007
Thursday, January 25, 2007
Let me first apologize for our lack of typing, it is nice to say things are a little slow right now. Actually that is really nice to say. Right now Christi, Addi and I are in Arizona for a conference. The weather is nice just a little cool. Perfect for golf. We will hopefully relax and rest. I did go to Duke this week and things are good. I just went to pick up some more Tarceva and figure out why I am still coughing. The consensus is I have a touch of Bronchitis, I am on an antibiotic now and it appears to be doing wonders for me. Just makes me a little drowsy. We will do better in keeping things up to date with what we are doing.
Also a little shout out to our neice Ryan, she turns 1 tomorrow. We love you guys and Happy Birthday.
Also a little shout out to our neice Ryan, she turns 1 tomorrow. We love you guys and Happy Birthday.
Monday, January 15, 2007
Thursday, January 11, 2007
Hello Everyone! (Christi) Just a quick little note out there to let you all know that things are good here. I personally had a rough day yesterday, no rough physically or emotionally, let's just say a rough day with the dogs. Charlie got stuck and cut himself, but everyone is now okay. For more details just email me and I can fill you in on the rest. I just wanted to make sure that everyone knew and would help pray for two friends. I know not everyone reads the comments, so we wanted to make sure we always keep others in our thoughts and prayers. First is a sweet 4 year old little boy, that is fighting cancer, Sam Keziah . Below is the comments from Suella...
Bo,
It's been awhile since I have posted a comment, but I wanted to let you know that it is awesome to see the fruit of our prayers is working! I have a request to many of your strong prayer warriors. There is a little 4 year old boy in Levine's children hospital that has been diagnosed with Stage 4 Wilm's Disease. It started in his kidney and has now spread to his lungs. His parents took him for a dr visit due to congestion in his chest and this is the nightmare they have endured since the week of Christmas. He has a website: www.caringbridge.org/visit/samkeziah
where you can read their journal and post prayer comments in his guestbook. It's wonderful that Addi's Cure is providing funds to fight cancer! I am still praying for you and your family and I hope that many will start praying for Sam Keziah as well. As a parent- I can't imagine the heartache that is felt to see your child in pain and hooked to tubes.
Thanks for the opportunity to let others know!
Suella Russell
Next is for Ginny...she is an amazing lady that has overcome a lot in a short amount of time. Please pray for her continued success. Her friend wrote to us and shared Ginny's blog link...
Bo & Family... I'm one of your random readers from Chicago (came to you from another blog). I just wanted to let you know that a good friend of mine has been inspired by your journal of hope and energy and started her own.
http://www.vmezb.blogspot.com/
Thanks for letting people in to your story.. it reminds other folks that they aren't alone and if they share their story..someone will be there to listen. Sarah, Chicago IL
We know there is a lot of people out there fighting and overcoming remarkable odds. And Bo and I completely believe your constant prayers have helped us and will help others. Stay strong and positive, this is an unbelievable world we live in where people are overcoming unbelievable odds.
Love to All
Christi
Bo,
It's been awhile since I have posted a comment, but I wanted to let you know that it is awesome to see the fruit of our prayers is working! I have a request to many of your strong prayer warriors. There is a little 4 year old boy in Levine's children hospital that has been diagnosed with Stage 4 Wilm's Disease. It started in his kidney and has now spread to his lungs. His parents took him for a dr visit due to congestion in his chest and this is the nightmare they have endured since the week of Christmas. He has a website: www.caringbridge.org/visit/samkeziah
where you can read their journal and post prayer comments in his guestbook. It's wonderful that Addi's Cure is providing funds to fight cancer! I am still praying for you and your family and I hope that many will start praying for Sam Keziah as well. As a parent- I can't imagine the heartache that is felt to see your child in pain and hooked to tubes.
Thanks for the opportunity to let others know!
Suella Russell
Next is for Ginny...she is an amazing lady that has overcome a lot in a short amount of time. Please pray for her continued success. Her friend wrote to us and shared Ginny's blog link...
Bo & Family... I'm one of your random readers from Chicago (came to you from another blog). I just wanted to let you know that a good friend of mine has been inspired by your journal of hope and energy and started her own.
http://www.vmezb.blogspot.com/
Thanks for letting people in to your story.. it reminds other folks that they aren't alone and if they share their story..someone will be there to listen. Sarah, Chicago IL
We know there is a lot of people out there fighting and overcoming remarkable odds. And Bo and I completely believe your constant prayers have helped us and will help others. Stay strong and positive, this is an unbelievable world we live in where people are overcoming unbelievable odds.
Love to All
Christi
Wednesday, January 10, 2007
Latest donations to Addi's Cure:
Shawn Lee (gift donation for Bill and Jo Cain)
Katie Williams (gift donation for Roy and Wanda Williams)
Donald Urban
David Nyberg
OM FInancial
I hope everyone is doing well. I am, and it has been a great week. Last night I stayed with Addi while Christi (Amy, Lena, Robin, Rachel, Candace, Anna, and Lauren) and friends had dinner and talked about some things to do for Addi's Cure. They came up with some good ideas, so be ready for some fun things going forward. Please do not forget to go to www.addiscure.org and submit recipes!
I have been feeling really good. I have been coughing some, but the doctors told me that they could see no difference in the cancer on jan 3rd. Other than that, i feel good.
Arin M. is coming to see me this weekend. I am excited to see him, he was my room mate in school.
Lance Armstrong has written a great article. Here is the link:
http://www.cnn.com/2007/HEALTH/01/10/armstrong.guestcommentary/index.html
See you soon!
Shawn Lee (gift donation for Bill and Jo Cain)
Katie Williams (gift donation for Roy and Wanda Williams)
Donald Urban
David Nyberg
OM FInancial
I hope everyone is doing well. I am, and it has been a great week. Last night I stayed with Addi while Christi (Amy, Lena, Robin, Rachel, Candace, Anna, and Lauren) and friends had dinner and talked about some things to do for Addi's Cure. They came up with some good ideas, so be ready for some fun things going forward. Please do not forget to go to www.addiscure.org and submit recipes!
I have been feeling really good. I have been coughing some, but the doctors told me that they could see no difference in the cancer on jan 3rd. Other than that, i feel good.
Arin M. is coming to see me this weekend. I am excited to see him, he was my room mate in school.
Lance Armstrong has written a great article. Here is the link:
http://www.cnn.com/2007/HEALTH/01/10/armstrong.guestcommentary/index.html
See you soon!
Thursday, January 04, 2007
Hello Everyone and Happy New Year! (Christi) It looks like we are starting 2007 on the right foot. Bo had a doctor's appointment yesterday, I apologize for the delay, exhaustion set in, but his lung has healed itself. We are still unsure of what caused his lung to partially collapse, but there was some comments made about Bo's hunting and the possible buckshot, but it looks as though his body is taken care of itself. Also to add to that good news, the cancer still appears to be stable! Huge, it looks like the "miracle drug" as Bo calls it, it is working. We will keep following the clinical trial protocol and visit the doctors every 3 weeks, but scans every 6 weeks.
We took Addi up there with us this last time and I think she helped cheer a few people up. She definitely took it upon herself to meet everyone there. We presented the check to Jeff Woods, he is with fundraising and Dr. Crawford. He was so excited! Thank you everyone! These funds are going to be used immediately to help lung cancer research! Now we just have to start planning great things for 2007, we have some partying to do!
Thank you again everyone I will never be able to tell you how much you love and support mean to me and my family!
Christi
We took Addi up there with us this last time and I think she helped cheer a few people up. She definitely took it upon herself to meet everyone there. We presented the check to Jeff Woods, he is with fundraising and Dr. Crawford. He was so excited! Thank you everyone! These funds are going to be used immediately to help lung cancer research! Now we just have to start planning great things for 2007, we have some partying to do!
Thank you again everyone I will never be able to tell you how much you love and support mean to me and my family!
Christi
Wednesday, January 03, 2007
Sunday, December 31, 2006
As New Year's Eve is upon us, I supposed it would be best to say that this year has certainly been full of surprises. While on the health front it has been a messed up year, I am very lucky to have such a successful business and such a great family life and friendships. I will have to say that 2006 has been a success overall.
I know that life gives you things sometimes that people think they can not handle, but I am her to tell you that anyone can handle it. I want my daughter to know that her daddy always handled things with a great attitude, whether I am here to tell her or not.
I hope that everyone has a great 2007. The Johnson's hope that 2007 brings joy and happiness to you and to yours....
I know that life gives you things sometimes that people think they can not handle, but I am her to tell you that anyone can handle it. I want my daughter to know that her daddy always handled things with a great attitude, whether I am here to tell her or not.
I hope that everyone has a great 2007. The Johnson's hope that 2007 brings joy and happiness to you and to yours....
Thursday, December 28, 2006
Wednesday, December 27, 2006
Tuesday, December 26, 2006
Today I was sick with a head cold so I had to miss Christmas with my dad in Hendersonville. Christi and Addi went so we were represented, but I was pretty sad since I do not get to see my dad a lot. Christi and Addi said it was a lot of fun. I will get up there soon.
Latest donors to Addi's Cure:
Lindsey Tidrick
Walker and Candace Ham (2)
Rosalyn Proctor
When I go back to Duke on Jan 3, I will present them with a check for Addi's Cure own source code. What this means is that we will know exactly what the money is going for, and I can report back to you what your dollars are doing.
I hope everyone had a happy holiday and spent a lot of time with friends and family.
Latest donors to Addi's Cure:
Lindsey Tidrick
Walker and Candace Ham (2)
Rosalyn Proctor
When I go back to Duke on Jan 3, I will present them with a check for Addi's Cure own source code. What this means is that we will know exactly what the money is going for, and I can report back to you what your dollars are doing.
I hope everyone had a happy holiday and spent a lot of time with friends and family.
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