Hello - Just a quick note. We are still in the hospital getting fluids. They doctors should make their rounds late this afternoon and maybe we will have an idea of what the next step it.
His kidneys have minimal output right now, but sometimes it takes 24 hours to see how things are progressing.
Please keep praying.
Love to All
Christi, Addi and Bo

Hello to All - It it with an extremely heavy and worried heart that I type this to you all. I do understand this is going to be a shock to everyone, as me and the family as well, Bo's body has taken a dramatic turn in the last 48 hours. Addi and I returned early to Bo with him considerably, fatigued, confused and bloated. We spent the night with him to bring him to the emergency roon early this morning.
It appears that Bo's kidneys are struggling and potentially shutting down. This could be due to dehydration, so we are getting fluids now in hopes they will start working again. The next 24-48 hours are critical. Please if you have a moment to say a prayer, please pray Bo's kidneys get working better and that we can get him to chemo.
I am in constant communication with the Duke doctors and everything possible that could be done is being done.
I will try my best for myself or someone else to keep you updated.
Love to All
Christi, Addi and Bo
At this time all we ask for is prayers and as help is needed I promise we will ask for help. For now please no visitors, we are hoping rest and quiet will help.

Hello to All - and Happy Thanksgiving!
I type this a little freaked out. Originally we had planned to visit my family in Kansas for the first time at Thanksgiving (Bo has to see the craziness of my Mother), but Bo really isn't feeling well enough to fly. He has developed a new, painful clot, in his leg which makes walking hard and well, painful. So he is insisting that Addi and I go on to Kansas. Don't get me wrong I am excited to see everyone in Kansas, I just fear that I will be so stressed out about Bo that it will be hard to enjoy myself. (As I keep talking to myself) I know that Bo is in wonderful hands and everyone with spare time will be checking in on him, I just don't want to leave him. I think this is the longest time in our 3 1/2 year battle I will not see him. Enough boo-hooing, I will have fun, try to rest, (botox these wrinkles out before I come home, right...)put on another 10 lbs compared to all the pasta and carbs I am making Bo and let Addi ride Papa Cow's, Cows and Horses.
Everyone have a wonderful Thanksgiving and if you are local to us, please check on Bo. We are hoping we can get up to Duke soon for chemo, we just need to fatten him up some more.
Love to All
Christi, Bo and Addi

Hello to All - Just a quick update and hopefully a few entertaining pictures. We met with Bo's nurses twice last week and they were incredible. They are ready for a plan of attack to help Bo in any way he sees fit. Right now we are just struggling with getting Bo to "see fit". He has been able to keep his food down and the pain managed, now to get him out of bed, showered and eating consistently...Now is when I miss those "mean" ICU nurses and the physical therapy. Me fussing at him has become white noise. So anyone that would like to take on the challenge I am more than willing to make this a relay.

With that being said, Addi is still the medicine we all need. She had a couple birthday parties this weekend (and missed another and the Panthers game, go Panthers) But well worth it, you can see from the pictures attached.

Love to all and we hope to see you soon

Christi, Bo and Addi

Hello to All - Just a quick update. We did make it up to Duke yesterday, barely. It was decided Bo wasn't feeling well enough to start any new chemo. So our plan for attack right now is to focus on his nausea and strength. They would like a local nurse to visit him at the house more frequently and to keep better tabs on him. Hopefully this will start soon, the sooner she comes the better we can adjust his meds or change them to help him feel better and actually keep some food in his system. Depending on how quickly we can handle this, then we go from there.
Many of you ask how you can help. Just be there for Bo. It is quite lonely feeling sick all the time. He cannot answer his phone all the time, but he does a great job responding back to emails. I know he would love to hear from everyone to help pass the time until he feels better. Also mark your calendars for February 27, 2010 for another year of Beating the Odds at Raceworld USA in Cornelius, NC. We are looking for silent auction items, sponsors and helpers to sell tickets!
Love to All
Christi, Bo and Addi

Hello to All - Oh I so wished I could tell you all that Bo was doing better (since I did say no post means no news is good news, but this time we are stable) He still isn't eating very much and is extremely weak. We keep trying, so we try some more.
With that being said, we are heading up to Duke tomorrow. After all the tests ran when Bo was in the hospital they do feel like a change is necessary in Bo's treatment plan. There is a slight change in his liver with the cancer, no where near where it was in July when they discovered it, but enough to warrant a different chemo. We have all decided this might be the best anyway, since we are unsure of what is making Bo sick, maybe the Altima maybe not, but we will do whatever we can to make him feel better. I just pray and pray that Bo will find the strength to travel to Duke tomorrow so the doctor can help him feel better. When you are feeling bad I am sure that last thing you want to do is drive and get chemo...
Bo's doctors have been amazing again and checking on us and trying to make sure Bo knows they want to exhaust every option out there for him and try to discover what is causing him not to feel well, I pray we can do it soon. Chicken broth can only get you along for so long.
I will let you know if we travel tomorrow. Please make sure to tell your family how much you love them and say a quick prayer tonight for everyone's health and happiness. We will find a way through this, we are just riding the roller coaster.
Love to All
Christi, Bo and Addi

No Duke today, Bo is resting and trying to feel better. J - I will check with doctors about his immune levels. They have been watching, but one more test cannot hurt right?

Here a some Halloween Pictures of our Alice and some friends trick or treating at the office...

So Sorry this weekend has been a blur and well, the blog got left in the dust. Bo got the okay to come home from the hospital on Friday. So if you were on I-85, that was me leaving you in the dust...I did set cruise control and tried to stay only 6 over....hehehe
With that being said, Bo's MRI Brain scan came back the same...he still has those 2 previous spots and they remain unchanged, so that is good news. Bad news is we still do not know what the problem is. They released Bo with him feeling a little better, but not himself. (I think he decided he had enough and wanted to try and make trick or treating.)
He is home, still in bed not feeling well, but eating a little and getting more fluids in him. I think the plan right now is to go back up tomorrow, hopefully, talk with Dr. Crawford and keep trying to figure out what might be the problem. I have contacted Dr. Palmer already and he had some tests ran while Bo was in the hospital and Bo's transplant meds appear to be fine, so hopefully they are not causing the problem, but maybe. He is willing to try anything, tweak a little, and see if that will help.
Thanks for the prayers and I will get pictures of Addi up soon, aka Alice in Wonderland and let you know when the next appointment will be and what we will do from there.
Thanks for all the love, support and patience.
Love to all
Christi, Bo - in bed not feeling well and Addi, bouncing all the walls with candy - we limit to one a day, but I think she stashed some somewhere in the house because her energy is 10 fold - that or I am getting older (never) Or maybe because Christmas is everywhere!

Hello to All - Today was fairly uneventful. More fluids, more tests and tonight they took Bo for a Brain MRI. Bo spent most of the day with his sister Caroline and trying to keep the doctors and nurses from coming in so he can get some rest. They want to run their tests, figure out what the problem is and kick him out, he just wants to feel better without being poked 500 times...to meet in the middle, is that possible?
We will get some results hopefully tomorrow and maybe find a solution. Please keep praying that Bo will find a way to keep some food in his stomach and that nothing new or old shows up on the Brain MRI.
Love to All
Christi, Bo and Addi
See I told you it isn't good when we post frequently...

Hello again - so quickly I know. Well today didn't go as uneventful as we wanted. Bo was admitted into the hospital today to hopefully just treat dehydration and nausea. They immediately hooked him up to an IV at the clinics and then moved him to the hospital. They are only expecting him to be there for a couple days. They just really want to help him get over this hump of not feeling good.
With that being said, they couldn't get an IV in him yesterday to run the CT with contrast, they just performed a CT. From what they can tell, they do not feel that the cancer has changed. Once they pump him up with fluids, they will try to run the test again with contrast and make sure. They are also going to run a Brain MRI and check the infamous "spots" on his brain.
We all are hoping and pushing towards that Bo just picked up with flu and hasn't been able to overcome it on his own. So let's keep praying for that and not anything any more exciting. I guess it is all in perspective when you are praying for a flu bug...
Love to All
Christi, Bo and Addi

Hello to All - Christi here - Bo and I made a pack that we would update once a week, even if we have nothing to say, which for anyone that knows us, having nothing to say really never happens.
Today we head up to Duke for the infamous scans. (We meet with Dr. Crawford first thing tomorrow morning for the results - BIG Prayers tonight please) With that being said, I am nervous. Bo has been under the weather for a week now. He hasn't been able to keep anything down and that makes me nervous, because with cancer, losing weight is never a good option. It is possible, Bo got one of the many types of "flu" going around, but it is hard not to "go there" whenever he is feeling bad. So I am heading off the doctors and sending an email up ahead of time to let them know we are having stomach issues and we are not leaving until we find out what to do. Or at least get some medicine to help for the time being. So I worry, I am beginning to get more wrinkles than I can count!
Addi and I have been doing well staying away from the flu. The poor girl had her 4 year old check up last week and that made her out of sorts, but she is better and ready to trick or treat. I promise pictures of that soon.
Love to all and we should update later this week with the results.
Christi, Bo and Addi

Just an FYI - This is from Bo!

I am really sorry to everyone that it has taken us so long to update the blog, plus the fact that Christi is always doing it and I have been silent. It was a real tough road back for me from the transplant. I went through a "foggy" period on a lot of drugs, and then there was the reinsertion part of getting back to work and life. I feel like I missed about a year and a half of stuff!

Christi, and I love her, has done a great job in keeping you guys up to date. As you know, I am having to do chemo again and it is really making me sick. However it is working so I can not complain too much. Work is really going well again, and I am even back traveling some with the next trip to Arizona coming up Monday.

Addi's Cure (www.addiscure.org) is doing well. Any help there is always appreciated.

The best thing I can say is that I am really trying to live life and make the most of the time I have left, however long that is. Addi and Christi are the most important things in the world to me, and it is imperative that I am with them. I also want to see all my friends and business associates too, so it is a hard juggling match. If I have not seen you lately, come see me!

Don't forget to hit me up on facebook as well. Bo Johnson is the name.

Thank you for all the support and prayers, they really work!

So Sorry - Where in the world have we been...So much going on, so much has happened, but do know that no news means good news. First we hit the zoo and then the beach. Addi is so Bo. "Look Addi there is a monkey." "Great Mom, what's next." I had to make her and Bo watch the monkey for a minute and then she realized they swung from branch to branch, sort of cool to watch.
Then I am happy to say a couple Saturdays ago we had a little get together of our "transplant friends." I always forget that Bo doesn't know everyone as well as I do, due to the fact he was unconscious, but he is getting to know them. Joe and Marilyn, Bob, Brenda and Don and Sue. (Debbie was partying in Vegas, just kidding, she was in Vegas though) We had a great time and I think Bo and Don felt more normal sharing their frustrations with one another as this recovery process continues.
I am so Sad to say the next day Bo's Papa, Great Papa to Addi, passed away. He had been diagnosed with Colon Cancer, survived the surgery, thrived in the hospital, was released to the rehab center and then one night took a bad turn and passed away, Sept 20th around 8:00. He was an incredible man that lived and lived to his liking. We were truly blessed to know him. Bo loved him like no other and is dealing with his loss. Papa has always been there and Bo with a heavy heart feels this loss. We both believe though that Papa continued on for many years without his love, Rosie, it is time for them to be together. He will dearly missed.
Yesterday we visited Duke for a marathon of a day. First labs, then bronch (they took some biopsys and we will get those results in a week or so, keep your fingers crossed they didn't find any fungus or germs.) Then to Hematology, Blood Doctor, she recommended Bo we a compression sock in the leg that has a clot. At first Bo hated the idea, now he is just starting a new trend. Finally a visit with Susan to look at the labs and Bo is holding steady and strong, so off to more chemo. He is doing well today, just tired, but aren't we all.
We visit Duke next October 15 for transplant doctor and vocal cords again. But before that DISNEY here we COME!
Love to all
Christi, Bo and Addi

Hello again - Not to much to report right now. Bo has the infamous head cold that is going around so he is pretty pitiful, I am freaked out anytime he gets anything respiratory. I just try to remind myself that he will get sick sometimes and we just need to watch the "color" of things. Maybe that is what is really freaking my out.
With that said, how about a few Addi stories. Today I told Addi that we needed to clean the house and that we were going to open the windows(by the way today was BEAUTIFUL.)
"Why are we opening the windows Mommy?"
"Well so the germs will fly outside of the house and hopefully that will help make Daddy feel better."
"But Mommy, what if the germs fly to heaven and make God sick."
"Well Addi, hmm, God knows to wash his hands a lot."
What do you say to that other than take the opportunity to drill into her head to wash her hands, with soap. School is starting soon you know.
Another Addi story is that fact she no longer says, "I love you." I know heartbreaking isn't it. But get this, she now says, "I promise." It almost makes it okay. When did she become a "cute" teenager. I thought I would have a couple more years before she dropped the "I love you". I guess we better watch out because in a month she will be Four.
Love to All or Addi says, I promise
Christi, Bo and Addi

Hello to All - We hope you are enjoying your weekend. I think we plan on resting and relaxing as much as possible with a 3 year old...I do believe our car is on autopilot with the drive to Duke. We ended up going up the night before and we had Addi with us this time. We pretty much let her choose if she wants to come with us our not, and this time she did, well at least after she woke up from her nap and changed her mind.
Enough rambling. They perform an ultrasound on Bo's neck and both legs. This took about 1.5 hours to do, needless to say Addi and I went and played at the children's hospital. Visiting there helps to put everything into perspective and we are so blessed to have a healthy child.
The results came back that Bo does have blood clots. This isn't an uncommon problem when people are going through chemo, it just stinks to add another thing on Bo's plate. We never knew how fortunate we were with Bo cycle of chemos before, he didn't really have any of these complications, but with the transplant we are hitting a few more bumps. So Bo will now take twice a day injections of his medicine to thin his blood. At a minimum he will do this probably for 6 months, potentially for life. We are setting up an appointment with the coagulation doctors, chalk up another department we are visiting on the World O Bo and they will run the ship with these medicines. So this weekend we are resting, Bo is feeling a little yuck from chemo, so I might take Addi out of the house to swim, but always stay close by in case we are needed.
Thanks for the prayers and hopefully soon we will get all this "fun" under control. We are still holding onto the good news that he cancer is considerably less and we hope and pray that it will continue to do so.
Love to All
Christi, Bo and Addi
PS I like to think that the blood is clotting because it is carrying away the cancer and disposing properly...

Seriously, here comes the next wave. We received a call last night from Susan, Dr. Crawford's Assistant and I believe the first words out of my mouth was, "Susan when your name popped up on the phone, I just threw up in my mouth. Can't we get 24 hours of pure happiness." With that being said, she didn't like that seeing her name made us feel that way, but immediately I thought, "It can't be that bad, Dr. Crawford would call us personally if it was."
Enough jabbering, they called to let us know that the radiology report (this is why we wait for the report before we get to excited. Someone remind us next time in case we forget.) did see the cancer regressing in the liver and the bones. (I do think I failed to mention that when we did chemo we did an intravenous drug to help stimulate bone growth and help in the healing and fighting cancer there as well) But there are two spots they believe the be blood clots that they would like to ultrasound. There is a chance these will turn out to be nothing, but on the flip side if they are, then we need to take care of asap. One is in his lung and the more concerning one is in his interior jugular. Scary, we know where the jugular leads and this is the one they want to ultrasound immediately. That location isn't common, and probably not good. All this stems down to another trip to Duke tomorrow for the ultrasound and then determining our treatment plan if it turns out to be something we need to take care of immediately. They are unsure what might of caused these, but again our doctors are great and Dr. Crawford, Susan and Dr. Palmer are working together for the best course of treatment and getting us in as quickly as possible.
Thank for all the support and never a dull moment with Bo.
Love to All
Christi, Bo and Addi

Hello to All - Finally a point for Team BO! Bo had a scan today that showed the chemo, Altima, is shrinking the tumors on his liver. The doctors also believe that his bones are trying to heal themselves as well. So today we did another round of chemo and added an additional medicine to help with his bone growth. The bone growth might make Bo feel achy, but will hopefully help with the healing. So yeah, yeah, yeah.
Dr. Crawford did let us know that Altima has just been approved as a maintenance drug and treatment plan. What that means for us is that we will not count this chemo in cycles or how many times we will do it. There will be no number limit, we will stop when this is too much for Bo to handle or when/dare I say if the cancer comes back. Then obviously it isn't working anymore. This type of chemo is different than the "typical" chemos people take. Bo should keep his hair and hopefully as the cancer keeps leaving his body he will get stronger and so therefore there will be less and less side effects.
We are being cautiously optimistic, taking today to be happy. But we do realize reality. But one day daring to "Dream Big" hopefully won't hurt.
Love to All
Christi, Bo and Sweet Addi
PS I made the parental decision to make sure Addi's first car is an Altima!

Okay we stink...so sorry. Bo has been doing so well, one full week at work with just a late start, I was afraid to post anything to jinx him. With that being said, I thought it would be a grand ol' time to get the stomach flu. For some reason I always get these things anymore, I wonder if it pertains to the stress in my life. I always to try "act" stress free, I guess my immune system knows otherwise. At least it was just a 24 hour sickness with another 48 being puny (another is that a word)
As I mentioned Bo is doing well, so we are hopefully optimistic that tomorrow will bring good news. We start off bright and early with scans and then the doctor around lunchtime and hopefully chemo. Sad when you are hoping for chemo, but it just might mean it is working. We will post when we hear anything. Thanks for the thoughts and prayers.
Love to All
Christi, Bo and Addi
PS - I have been stressing to Bo lately that we are not going to let the doctors convince us he is sick because of what his scans might say. He is feeling better and that is what matters most. Positive thinking will triumph, with a few prayers.

So sorry to be gone for so long. Lots to do and lots has been happening...Where to start. Bo did well with his first round of chemo. If you remember there are 3 weeks between each session. So right before his second round we decided to go see my family in Kansas. Note that this was planned a while ago, but we had things change medically so I never purchased the tickets until it was a for sure go ahead. Well we just decided to go for it.
With that said, the 5 Morgan kids (and spouses) planned a surprise wedding anniversary party for our parents 40th. I have to say we were so proud of ourselves and our parents friends for keeping it a secret. We had to tell my dad "something" was planned, but we kept our mom in the dark and boy was she surprised! A big thank you to all the family and friends that showed up to help us celebrate, it will be one of those for the memories.
I did get to see a few friends while back home, unfortunately under unfortunate circumstances. A friend of mine, Jessica, her mom Joy passed away after battling cancer for 4 years. She was an amazing woman that knew the secret on how to live life, always to the fullest. She will be missed. But her passing allowed me to see some of the sweetest ladies I know. I do think they all shrunk, don't get me wrong ladies, you were not the tallest in school, but putting you all together with me, makes Christi one big giant. Anyway, it was good to see everyone, we need to get on planning a trip with all the ladies together.
Also in the news, tomorrow I will be an aunt again, Brady Morgan should be born via c-section, so prayers out to Curtis, Erin and Ryan.
Back to Bo's health, we made it back on Sunday for our second round of chemo on Monday. Bo appears to be doing well, it typically takes a couple days for the chemo to hit, but for now, we are just fatigued. Let's hope and pray it stays that way. We will visit with Dr. Crawford on August 18th for scans and treatment plan, so mark your calendars that will be a big day. Until then, we play and we play hard.
Love to All
Christi, Bo and Addi

Just a quick update to say thank you to everyone for their thoughts and well wishes. Bo is a little fatigued with the chemo, but they do say the rest of the side effects might come about 5-7 days after, so the first of next week. We hope to be out and about in a short while.
See you all soon
Love to All
Bo, Christi and Addi