Hello everyone Christi here. I nice gentleman is letting me use his computer for a moment to type a little, please pray for his wife as well, Marilyn Edwards. She is another ray of hope. She was on an ECMO machine earlier and has since been removed and breathing, but has suffered other complications, but like many people here and like the Johnson's she is fighting to straighten everything out. Her husband, Joe, has been so patient with me explaining the process he just went through and getting everything down pat. So thank you to their family.
There isn't any major changes, they are getting Bo's Potassium levels under control using machines and actually I was just interpreted by Lisa the educational nurse and she informed me that Bo's urine is back going again and the Potassium levels have lowered to an acceptable high level. These levels with continuously fluctuate so I have decided to stop worry about numbers and look at the big picture so we are.
I will call with more news when I get some. Thank you Thank you Thank you for praying and putting nice comments. I cannot tell you how much that means to me and all my family members. We are going to get through this, it might take all of us supporting each other, but we will make it.
Love Christi
PS Thank you to everyone that is distracting Addi, I love you all. (I think I love Bo more, but you know that!)