Another day down and things are going well. Bo is slowly feeling stronger and stronger. It is just hard to try and stay awake most of the day when he is used to being able to rest when needed. We spent most of the day at the clinics waiting to visit with the doctor. Unfortunately I was wrong about meeting with the doctor that performed the wrap procedure, that is next Thursday. So today we just met with the doctor, but good news. She is allowing Bo to stop his tube feedings, which will slowly decrease his need for insulin, hopefully. Bo is extremely excited about this because first he doesn't have to hear the pump all night long and this will allow him to leave the house anytime he wants (he used to have to been hooked up from 6pm-8am) So now we just have to nag him to drink tons of water and eat tons of good food with protein. Another step to feeling whole. So now we focus on keeping his trach clean, this will stay for probably another month...Only time will tell.
Love to All
Christi, Bo and Addi