Good Morning - The post times are now probably going to very, life is busy, but life is good. To ease everyone's mind, we have officially made it our first 24 hours together. The medicines are a little intimidating, I cannot imagine going home when you did Don and Brenda, but we are getting it straightened out. I just like my day to be a little organized when I can make it, that way we can be a little bit on a whim with Addi. The night was a little like having a newborn again. Every couple hours, minutes, I would look over and make sure he was alright and breathing okay.
Just so everyone knows where we are, but is taking multiple pills, but no IV's right now. He still has his trach which we clean daily and he sleeps with a humidifier over his trach. He is still getting his tube feeds through his GJ tube at night, but hopefully when he diet picks up the feeding will stop, but the tube stays in for 3 months after the wrap procedure, we still have about 2 months to go with that staying in. He is currently still using insulin, but they are hopefully this will stop when the tube feedings stop, we will cross our fingers and pray for that. He is doing rehab daily, today will be his first day, and they will help working his stiff right hand. We know Bo will have a little of hands to shake in the years to come. While out of the hospital we will see the doctor once a week and they will keep a close eye on him and me, so that makes me feel a little better. I think that is all right now. Thanks and we will keep writing for those that want to read.
Love
Christi, Bo and Addi