Good Morning - The post times are now probably going to very, life is busy, but life is good. To ease everyone's mind, we have officially made it our first 24 hours together. The medicines are a little intimidating, I cannot imagine going home when you did Don and Brenda, but we are getting it straightened out. I just like my day to be a little organized when I can make it, that way we can be a little bit on a whim with Addi. The night was a little like having a newborn again. Every couple hours, minutes, I would look over and make sure he was alright and breathing okay.
Just so everyone knows where we are, but is taking multiple pills, but no IV's right now. He still has his trach which we clean daily and he sleeps with a humidifier over his trach. He is still getting his tube feeds through his GJ tube at night, but hopefully when he diet picks up the feeding will stop, but the tube stays in for 3 months after the wrap procedure, we still have about 2 months to go with that staying in. He is currently still using insulin, but they are hopefully this will stop when the tube feedings stop, we will cross our fingers and pray for that. He is doing rehab daily, today will be his first day, and they will help working his stiff right hand. We know Bo will have a little of hands to shake in the years to come. While out of the hospital we will see the doctor once a week and they will keep a close eye on him and me, so that makes me feel a little better. I think that is all right now. Thanks and we will keep writing for those that want to read.
Christi, Bo and Addi
Wednesday, September 17, 2008
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Bo and Christi
All I can say is we love you guys and can not wait to come and see you. Love and prayers from Kansas
Cyndi and Cheerleader Ami
Yes, please keep writing! It makes us feel so in touch with you guys even though the miles separate us! Glad to know your first night in the "summer home" went well. Looking forward to seeing you soon!
Rachel, Justin, Savannah, and Byers
YEY!!!! And writing is a must if and when you can. I LOVE YOU ALL
Yea!!! Just checked to see if you were still here and saw you were home! I am so happy for you guys. Keep the updates coming, your 9300 angels are always thinking of you. Prayers are still heading your way...
We read every day. Thanks for always keeping us up to date. You are all in our prayers.
love to you all,
Even though I talk with you quite often, (trying not to bother you too much), I still check the "Blog" many times during the day and evening to see if you have posted anything new. I feel as though I am with you all. Please keep writing.
As always love & prayers to you all! Mom in Kansas
I cannot let "mom" outdue me. I also enjoy all of your "blogs". Please keep posting. Love, Aunt Marlene from Kansas
Thank you so much for the update. I can't imagine how great it must feel to have Bo "home".
Jenn in CA
Christi, Bo, and Addi,
Twenty-four hours together and alone, what a wonderful happening!
We are so happy everything is going well.
When you have time and can spare a few minutes, the blog is so appreciated. It helps us to keep close to all three of you. We channel our positive thoughts and love though it. We are so thankful that you continue to write and keep all of us connected to you. Please know how much you are loved.
Keep positive and keep laughing.
Aunt Mary and Uncle Jeff
Congratulations...what a great accomplishment...the two of you are incredibly inspiring...just like you always have been. You continue to write as we will continue to pray. You have come a long way...enjoy all the time you will now get together.
This is wonderful news. Love, Robyn
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