Hello to All - Sorry another long doctor day today. These days are long, but we are getting them down to a science on getting in and out of there in a reasonable amount of time. Please Bo teasing and talking with the nurses never hurts. They are a great group of woman, and bless them they handle Addi when she has to come with us.
Bo did alright today. His breathing test was down a little bit and they are checking him for infection or a flare up of CMV. This is a virus that some of us carry because we were exposed to it a young age and some of us do not. Sort of like chicken pox. Once you get you are immune to get again. Except CMV when you get is like the flu, so most people do not realize they have it or have been exposed to it. We do know that Bo's donor lungs carry it and Bo never had it, so he is on a special antibiotic to control the flare up, but two weeks ago we had to cut that back due to his white blood cell count going down (a reaction to the antibiotic) So now we keep a close eye on Bo and run some blood tests that we should get the results back in a couple of days. If the CMV is present then he starts on IV antibiotic and hopefully that will work. Let's just hope if this is it, it stays quiet until the blood tests come back. It is possible Bo might have an infection, sometimes bronch and biopsy's (like he had last week) stirs up stuff and then he needs antibiotics for that also. Or Bo could of just been tired today and not do well. Only time will tell.
I promise I will let everyone know when we find something out. (Since we are all working on our PhD's now)
Love to All
Christi, Bo and Addi
PS - Please say a little prayer for Debbie and her family. Yesterday her husband Danny lost his fight in ICU. If you remember Danny was the miracle that had a double lung transplant and then complication to where he then had one lung replaced, so 1 1/2 transplants. I miss my friend Debbie and will continue to pray for her. She always carried herself with so much grace, listened and empathized with me and encouraged all with her positive spirit. I am sorry I did not get to say good-bye to her before she left, and I pray that our paths will meet again. Love to you Debbie