So this week we stink...sorry. Addi and I are back up with Bo after our couple days in Cornelius so Addi and go to school and play with friends. Thank you to everyone that made time for us, we greatly appreciate you time, attention and toys. Addi is so ready to be home, but such a trouper to be with us. I am not really sure what we are going to do when we move back to Charlotte permanently and we lose our beloved Evelyn, I do not know many people that would help a complete stranger, who was (is) a little nutty living in a hotel room with a 2 year old to entertain in a hotel room. She is truly our prayers answered in a time of need.
Today we visited with the doctor and cannot complain about the wait time. Bo is doing well and we no longer have to bandage where Bo's trach was...he is healed. So now we work on getting rid of the GJ tube and therapy of his hand. Bo's breathing numbers a little down right now. There are numerous reasons for this, but just to be on the safe side we are going to take a biopsy of his lungs next week on top of meeting with other doctors. This will tell us if we need to increase some medicines or just tweak them. So next week we have answers. I pray this isn't anything more serious.
Take care
Love to all
Christi, Bo and Addi