I apologize for just now posting, no computer and I have been spending as much time as possible with Bo and Addi. Today was a quiet day, we have a great doctor here that is more than willing to let Dr. Crawford call the shots. He is constantly in contact with them. With that being said Dr. Crawford and Susan are coming down tomorrow from Duke to put "eyes" on him and assess the situation from people that have seen him through his battle for 3 1/2 years. I also know that they probably understand that I cannot move through this process without differing to them some way. I value their input and help guidance from them will give us all confidence in decisions being made.
Bo has improved kidney function today, so our decision to keep hydrating him was a good one. He still has a long way to go to have normal function and everyday is a new day, but as we have learned before, stable is good. Bo has other complications as well right now, some minor and some not so minor that we will need to address also. One day at a time, one step at a time. As for now though the prayers for improved kidney function are working, now we also need to pray for reduction of fluid in his 3rd space. (Which, dumb downed for Christi means, swelling in his legs and abdomen) This is tricky because most meds they would use to relieve this are hard on your kidneys, so we wait and try to make Bo comfortable with pain meds until we can decide what to do.
Thank you all for your wonderful support and especially all the love to our entire family. I am extremely grateful to everyone and the kids helping to distract Addi so I can be here as much as possible. We can feel the love and support. I also know it is hard not to come and hug us all here, but thank you for respecting our need to handle Bo delicately right now with no visitors. He exhausts easy and if I know him, he would want everyone to come in and chat for a couple hours. Just know we tell him everyone is thinking about him and he knows he is loved, never doubt that.
I promise will do better keeping everyone informed, I just need to remember to keep a computer handy.
Love to All
Christi, Bo and Addi
PS - Sorry for all the typos, when my posts are long I have a hard time going back to correct my typing and grammar...