Good Afternoon everyone - I snuck back to the hotel today to a little R&R when both Bo and Addi are resting. Bo has had a busy morning, they walked 400 feet and he just finished his trach trial of 3 hours. He is resting now and will do another one if not 2 more. Hopefully by the end of the week he will be off the trach all day and just resting at night on the vent. Bo is having a hard time right now trusting himself to sleep without the vent on, he concentrates deeply when he is off the vent and just cannot quite let go of that fear. Please pray to give him confidence and patience with these trach trials.
Someone asked about his hand. This is looking much better. I actually saw if for the first time in a while this weekend when they changed the bandages. They compare his hand right now to someone that has had severe frost bite. The blisters are slowly healing (they cover all his fingers and the palm of his hand) They leave the dead skin on during this healing process, so it doesn't look pretty. But Bo does have movement in all his fingers so that if definitely a start. He hand is still really inflamed, but in time when he gets more movement they will be able to determine the extent of the damage (if any - let's hope). Sorry that was a long answer, but to use Bo's words, "It looks Nasty"
Love
Christi, Addi and Bo