Someone really needs to get me a thesaurus...Today was another, dare I say Amazing day. That doesn't quite put it into the right words, but I will stick with it. He once again started his day at 5:00, by 6:30 he was on another trach trial for 4 1/2 hours...seriously Wow! Then he walked 2 times before 11:00. At 11:00 they did the 1st of many routine biopsy's of the lungs to check for rejection. I know saying those words will panic us all (it seems way to early to be talking about it) but do know that there is many different immune suppressant that can be given for rejection. I compare it chemotherapy, it might take the doctors a couple different tries to get the right formula to keep his lungs at peace. (I will not panic if they didn't get it right the first time, so no one else is allowed to panic either)
So the biopsy was done at 11:00 then Bo rested some. Walked again another 400 feet and was on another trach trial for 5 hours! That is almost 10 hours today! The nurse expects him to rest well this evening and start early tomorrow. Today we also removed all additional medicines (except what he will be taking on a daily basis) We remove his A-line (measured his blood pressure internally) and tomorrow we will hopefully remove the rest of his draining tubes. That means when he walks tomorrow he will not have to take his IV poll with him. Just me and him (and the nurse for a little while longer)
Today Bo also asked me what he had to do to "get out of here" I almost cried. But to let everyone know, he must be off the vent 48 hours to get out of ICU and then he must walk 20 laps (not quite sure how far that will be) to get out of the hospital. Then we will have rehab for 23 times. It is amazing that I can even begin to mention my previous statements. I know it will probably take a couple weeks, but I cannot wait. Patience and he will be at the "summer home" before we know it!
Love
Christi, Addi and Bo