Saturday, July 05, 2008

Another good and stable day. Bo is getting more used to "step down" and started to catch up on the rest he missed out on when he was anxious to get off the vent. He was a little frustrated this morning, the first thing out of any one's mouth was that they were going to have to put off his vocal cord procedure until Wednesday. That is about the 5th time they have delayed doing this and being able to talk is pretty much number one on Bo's list of things to get done. Welcome to Duke time...I will believe it when it happens. But other than that we had a good day. A lot of walking and sleeping. So far we can accomplish 12 laps in a day, Bo needs to do 20 to leave the hospital (along with the necessary procedures)
We have "tentatively" scheduled replacing his GJ tube first thing Monday morning and tomorrow they will put a smaller trach in that is metal (his one now is plastic) They are calling for another consult on Bo's hand. Everyone, the nurses and OT (occupational therapy) believe Bo will make almost a complete recovery with his hand, but we need the powers that be to confirm that. So we have asked the "wound" people to consult and "vascular" to consult as well. The last thing on Bo's chart was that Bo's hand was necrotic - aka dead, well that isn't acceptable and we are going to get that one looked into.
I will let you know what they say tomorrow
Take care and rest up
Christi, Addi and Bo


Anonymous said...

Continue to be a great advocate for Bo. You have done an AWESOME job of keeping us in the loop as well as taking care of your family. Keep up the great work and know that we continue to send our strength and prayers to ya'll!
The Glidewell Clan

Anonymous said...

Chrisiti and Bo,
We are in Hendersonville and all the Johnsons are excited about how Bo is doing. We know you were happy to celebrate the fourth in a new room.
Keep up the good work. You make all of us so proud. We know it isn't easy, but these steps are leading you right out of Duke and back home.
We send you lots of love, hugs, prayers, and lots of laughter.
Take care.
Aunt Mary and Uncle Jeff

Anonymous said...

We are so proud of you all and we hope you had a restfull weekend. We will keep checking in on your progress.
Our love and prayers,
Crystal (in Connecticut)

Anonymous said...

Hello Christy, Bo and Addi,

We've keeping up on the progress guys are doing fantastic and we are so proud of Bo for strength and determination...keep it up...

Kevin & Blaire...

Candace said...

Day by day it seems things seem to improve. We continue to pray for good news and the release from the hospital.
Love to you all,