Good Evening Friends - I unfortunately do not have really anything new to post tonight. This morning they did another biopsy and we will get the results of that back soon. From a visual aspect another doctor thinks Bo's lungs are looking good. He stated that the sluggishness in Bo's diaphragm could be the main culprit to the accumulation of CO2 in Bo's lungs after an extended period of time. I didn't get to speak with the doctor personally (as planned) but I did get to speak with the transplant coordinator and she reiterated what I just mentioned. After speaking with numerous people yesterday, a force of people came forward to help in the rehab of Bo's diaphragm. So Bo is going to work, work and work to get that stronger this next couple of weeks. They are hopefully going to start weaning Bo back off the vent tomorrow. I pray for Bo's strength to endure this yet another time. There is almost nothing harder for him to do and the fact that he has done this so many times is a testament to his strength and fight to live. I just wish sometimes he could get a break and it would be easier. Tomorrow I will sit with him and encourage all day long. We have a mantra we say to help calm our nerves "I Love Addi, I Love Addi, I Love Addi" It always seems to help.
I did get a great visit today. Mr. Fuller came to check on me and some other friends, and he couldn't have come at a better time. I was started to get frustrated with our vicious circle and there was that red St. Louis hat with arms wide open. It is selfish how quickly and easily I feel into them. I hope to have the strength and courage that he has. The Fuller family has been through so much and yet again unselfishly they come to the hospital to check on us still fighting. We talk about our adversities for the day and get the honest reminder that they would give about anything to be there too.
Everyone rest up because "We Love Addi" and we will keep fighting.
Love
Christi, Addi and Bo
PS - I am trying to watch the special, The Last Lecture, Wow what a hard one to get through. It hits a little close to home...what an amazing family.