What a nice and relaxing day...a big thank you to Lauren (and always Evelyn) Between the two of them I know Addi's is in good hands. (They have been doing some wonderful babysitting and I am greatly appreciative.) Bo and I have been meeting with the doctor's to schedule procedures, they thought that today they would downsize his trach and put the steel one in. This is the first step in closing the trach up and will be much more comfortable for Bo. But once again, the parts were put in this morning and then we wait. And we waited all day, nothing. They said hopefully it will happen tomorrow. Tomorrow we have scheduled the replacement of the feeding tube (one of them is clogged) This is suppose to be first thing in the morning...hmmm I am not trying to sound unappreciative for everything Duke has done, but this is the most frustrating part.
Bo and I did spend most of the day together, with me translating to the new doctors and nurses. I hope this makes Bo feel better knowing that I will say what he wants to say and stress what is important to us. (them not sticking him 5000 times trying to get some blood) Bo is doing well and hopefully this will be a big week of accomplishing many minor medical tasks.
Thanks for the thoughts and prayers.
Love
Christi, Addi and Bo
PS Nothing about the hand yet...