Hello to All - Bo accomplished his eating test today, we will have results hopefully Monday or so. I am sure he was excited that the second bit of food he ate was radioactive eggs and toast (he had pudding and an oatmeal cookie for the swallow test) But hey food is food. The test did tire him out, he eats the eggs and then waits an hour, x-ray, waits and hour, x-ray, waits and hour, x-rays and well they watch to see if everything is still working. After he got back he cleaned up, and got to take another shower, that tired him out as well, but man does he look better. They will run one more test, a camera down his esophagus to make sure nothing new has happened, before the decide to do the stomach wrap. All this is being done because Duke has a huge study, and higher than average survival rate, on how acid reflux effects lung diseases. (Long story short, you can calm the acid from coming up, but that doesn't stop the action of the gunk coming up and into your lungs) Hey whatever it takes to keep him around for a long, long time.
This weekend will be relax, visit and work on talking and walking. He is doing so well, we just got this one last thing to get done procedure wise, then we will work on getting off the vent full time. Right now they keep putting him on at night to make sure he gets a good nights rest. They said once they get everything else together, then it will be easier for him to stop wanting the vent at night. (they help take the pressure from him and therefore hopefully ease his anxiety.)
Pray for a quite weekend and everyone take care as well
Love
Christi, Addi and Bo