Let me say that Bo is taking the doctors orders full force. The doctor told Bo that she wanted him to walk and work out and if he felt exhausted she would put him back on the vent at night. Well we all know Bo loves the vent so this morning before noon Bo had walked a 1 mile and then another 1/3 of a mile. He then proceeded to walk over a mile on the treadmill, 10 minutes on the NuStep machine and lifted weights only to follow up with another 1/3 of a mile. He also is working on plugging his trach, he started today with 40 minutes with it plugged.
Tomorrow morning he has his EGD, camera down the esophagus to make sure nothing has been going on with the acid reflux. Once that is done the team of doctors will meet and discuss when they believe it to be safe to do the wrap procedure (this will allow Bo to eat solid food again) I pray that they make the right decision and nothing sets us back. I will let you know what they decide as soon as I know.
Take care
Love
Christi, Addi and Bo