When I typed the blog entry for yesterday, I had no idea it would cause such a stir.... I got many calls/emails yesterday and today, as well as several entries into the blog. My purpose of this blog is to always be as honest as I can about how I feel and what is happening. (remember the doctor and his finger from the beginning? :) ) During my time living with this mess, I have been very lucky from the standpoint of having a great support cast. I won't even talk about Christi and Addi because you know, but my parent, friends, and a lot of people just showing they care. This has carried me a long way and has given me many positive days. However, I knew there would come a time when I would have some bad days. What surprised me most was the same support really came through again. Candace called me and yelled at me, Caroline wrote me a long email as well as Jeanne, and Christi stood by me like she always does.

I am sick still, and I do not feel very good today, but I am feeling better mentally than yesterday.

I think that the pressure of dealing with this has gotten to me. I also think it is affecting my job as well, which is very important to me. Bill, Jo, Brian, and everyone at FIG is really stepping up, but it bothers me. I just want to go back to a normal life, and that is just not possible anymore no matter what I do.

Just wanted to make sure I explained a little more. I am still fighting, and will not give this up ever because of Christi and Addi. I am sure there are better days ahead....

It has been awhile since my last post, and a lot has been going on. Christi and I just got back from Cancun, Mexico and we had a pretty good time. I got a little sick at the end of the trip, and in fact am still sick today. I am not sure if the two were related since there were different symptoms, but never the less, sick is sick. In Cancun, Christi and I relaxed some and we even swan with the dolphins. We stayed at a place called Le Blanc which was nice. Caroline and Mike, Justin and Rachel, Wade and Kenda, and Hamilton were also there from FIG. It was a reward trip for Annexus. I think everyone had a good time.

I also have been doing acupuncture for a little while. It has been interesting to be sure. It does not hurt, and they do not put the needles on fire.... Rumors. I will let you know how it is going.

Update on me - like I said, I am sick today. I have a cold. It seems that any time I travel I get something, a direct effect from chemo and my immune system being down. I do believe that my cancer is getting worse, and I think they will confirm this on the 30th. I am having more and more trouble breathing with any more than normal excursion. I am also going to for sure ask them to put me on the lung implant list. I feel like this is something I have to do. I do think the medical community is doing a lot now for detecting cancer early and better, but it seems to me that the things they are doing are all for stage 1 or stage 2 people. Also, for every death of breast cancer, they are spending $13 for research, for lung cancer, they are spending $1. This is pretty telling to me. The more "sexy" cancers are getting the dollars, while people have a stigma about lung cancer. I hope Duke says ok for the transplant.....

Christi has been really worried about me and my attitude towards this situation. I do not think I have changed at all, just think I am not going to live in a dream world either. I am worried there has been a change, and it does bother me. I am still eating great, doing all of the alternative things I can do, and praying every night. It is hard to get up every day and face the facts. I think every understands life and death, but most people do not face it daily. I am not going to just die one day suddenly, it would be a process. I wonder if that is better or worse?

Some Pictures from her Big Day!

She really liked, but didn't understand the bull's tongue.

Hope everyone had a good weekend. We sure did. This was Addi's birthday weekend. On Saturday, we had a party for her at the Lazy 5 Ranch. This is a place where you ride a wagon around and see different animals. Many of her friends joined us, as well as Tracia, Caroline, Mike, Grams, and Bill. We saw zebras, elk, giraffes, pigs, prairie dogs, and many other animals. I think everyone had a great time. We had pizza and cupcakes as well. That night, we had a second celebration with my dad and my grandpa. Tracia, Caroline, Mike, Grams, and Bill came as well. It was fun.

Today we are going to take it easy and let Addi play with the many toys she got. She is such a good little girl. It is really amazing have Addi around.

A big thanks goes to Christi for this weekend. She planned and did everything for Addi. She is a great Mom and deserves the credit.

Hello everyone, sorry for the slow post but things are getting busy here with our little girl turning 2 on Saturday. She is going to have a birthday party at Lazy 5 Ranch. There everyone gets to ride a wagon through this animal farm and feed them from the wagon. Do not worry I am sure there will be tons of pictures posted.
Bo also took his first plane trip, we all sure did hold our breath, but everything turned out fine. I think he was excited to get that little bit of independence back since the collapsed lung. Looks like the procedure worked. I know this is early to ask, but please pray for Bo's scans on the 30th. We are extremely anxious about these scans, since we haven't had any since the hospital stay. We are really nervous that the uncomfortable feeling Bo is having is the procedure and not the cancer. So a few extra prayers for good results and something to calm our nerves. (3 weeks is a long time from now)
We will post pictures soon of Addi turning 2. It truly is hard to believe she is two.
Love Christi and Addi
PS A special shout out to our new friend Preston Jon Graham who arrive Monday at 5:37, 8 lbs an 20 1/4 inches long. I can't wait to take Addi over to meet him!

Just wanted to make sure everyone knew that we got two big donations in today. Equitrust gave a donation to Addi's Cure today. It was very nice and I was really appreciative. Heather Kane brought it to the office.

Allianz also gave a donation as well. They doubled what they did last year, and it meant a lot that Eric Thomes brought it in.

I hope everyone is having a good day!

I thought you all might enjoy some picture of the corn maze and bike race...

Hope this email finds everyone well. It has been awhile since I posted, so I wanted to make sure I let you know about last week. We did a lot of work, Addi went to school, and it was a good week. This weekend Kevin and Theressa Meyer came down to visit from MI. Friday night, we went out to eat. Saturday we went to the Amazing Maize with some people from work. Christi, Addi, Bill, Jo, and the Meyers won the competion in 42 minutes. It really was neat. That afternoon we went to a fund raiser for Addi's Cure. More below. Sat night, we just hung out and watch all of the shows we put on DVR and had Chinese food. Sunday, we went to play golf. I shot a 94 and did pretty well. (43-51) I got tired at the end. Trying to get back into it. I really hoped the Meyers could have stayed longer. We owe them a trip, so we need to go to MI next summer.

I wanted to talk more about the fund raiser that happened Saturday afternoon. It was really awesome. 49 bikers had a poker run for the charity. Interstate Motorcycles was a big sponsor, as well as Red Bull. They had a cookout after, it was really cool. Lauren in my office helped with it, but her parents were the ones that really brought it together. I could not believe what a good job they did.

It is very endearing to see people working together to do things that show society cares.... Very nice. For as much bad as we have in the world, we do have good. Keep the faith!

Hope everyone had a good weekend. Arin, Christina, and Monroe came to see us from Miami and also to attend Touch A Truck today. They had a good time and Monroe was born the same day as Addi, so they had a good time playing together. Arin and I shared an apartment at ASU while I was there.

I read all of the logs and I thank you for weighing in on whether I should get a lung transplant or wait on science.... One asked a question if I had to take meds to make the new lungs not be rejected, and the answer is yes. If you have not weighed in yet, please do....

Today was Touch A Truck, and I am not sure how it could have gone any better. There were at least 1500 people there, and it was HOT! Tracey Greene is the one who thought of the idea to have it, and Addi's Cure was the cause she decided to use. We really appreciate it. Tracey, Christi, Rachel, Lena, Robin, Candace, and Amy did such a great job in planning this event. I heard nothing but great things from everyone who left. There were also other volunteers that did a lot as well. Brian was the cow and James was Elmo. I know they were hot. Walker, Jared, Anna, Jamie, Heather, Emily, Tracia, and I know I am forgetting some people, did such a good job helping. It was a huge success. We raised over $7,000 for Addi's Cure. Later this week I will give everyone an update on what we have done this year. I hope that these events will keep going. This would mean Addi's Cure would have a schedule like this:

Spring: Addi's Cure dinner in Cornelius, NC
Summer: Addi's Cure event in Lawrence, KS
Fall: Touch A Truck event in Cornelius, NC
Winter: Fund raiser but no event.

This would be great.

I am very lucky to have the support group I have. Part of the reason I am still here is that people have shown they care.....

Hope everyone is doing well. Went to Duke today for Avastin and a checkup, but no scans. My next scans will be October 30. I did get cleared to fly again, so that was positive. When I was in the hospital for the lung deal, I was unable to do Avastin because of internal bleeding concerns. Now, this is my second time doing Avastin since then and I really feel good about it. It is really funny about side effects, they kind of tell you how the medicine is doing. Example: When I was in the hospital and could not take the Avastin, I was still taking the Tarceva pill that I take daily. The doctors think that the Avastin helps the Tarceva really "get in" and do it's job. One of the side effects of Tarceva is acne like stuff on my neck and face. When I stopped the Avastin, my face cleared up and was again like the Bo of old. Now I am back on the Avastin, face and neck is bad again. I am not complaining, the worse the rash, the better it is working I think.

My neck Duke trip is 10/10, then scans 10/30. I also talked to Duke about the lung transplant idea. I am really working on them. Susan said she would rather me do it at Duke rather than Stanford, so that is positive. I am leaning this way. The decision is:

Do not do a lung transplant, count on science to save me and make this a chronic disease treated by medicines. If this does not come true, I will die...

Do a lung transplant and trade one illness for another. Basically, taking medicine to help my body not reject the new lungs. If new medicines came out later, then I took the chance when I should not have.

What would you do? Think about it and post it on this blog so everyone can see. I do read the posts, I promise!

Hope everyone had a good weekend. The Johnson Family did. On Saturday, we hosted a shower for Lena Graham. She is having a baby boy and there were many nice ladies here. Addi and I left before it started to have father/daughter time. We went over to Brian William's new house that morning, and took Mommy's car to get washed. We then came back to crash the party. In the afternoon, Addi took a quick nap then went to Jacob Lee's birthday party. Dad got to just hang out and watch football. I got Panther season tickets this year, so Christi, Brian, Tracia, and I went to the game. We tailgated before, then watch the Panther's get drilled. Great day as far as weather, and it was so good to get back to see Addi. I will ask Christi to post some more pictures soon.

Wednesday i go back to Duke. I am feeling ok. Still tired, still a little short of breath going up stairs, etc. I did send one of my doctors a conversation I had with a guy that had BAC like me, and got a double lung transplant. He is still rocking, although he did say it was like trading having cancer to having a foreign organ in your body. He said it is still tough. Nice guy.

All right, I have to do it. It is September, and this is when last year I really pushed everyone to give to Addi's Cure. I am asking that again. We have really done a great job of raising money this year, and I will make the same offer I made last year. From this point on, I will match up to $25,000 of what people give until the end of the year. Please give what you can. Last year i had to match it, and I want to match it again!!!! I am going to send an email to all the companies that gave last year as well.

A reminder - September 23 is Touch A Truck in Lake Norman. Here is the website:

http://www.lkntouchatruck.com

Just wanted to pop in and say hello. Things are going very well. Work has been crazy, and I have not been able to go quite as fast as I was going before. I am still letting my lung heal from the procedure, and it still is painful. I cough a lot of still have to catch my breath some. One of our friend's mom went through this and actually did phy. therapy so maybe I will look into that. On a bright note, I did hit golf balls on Saturday for about 45 minutes, and did pretty well.

Addi and Christi are really doing great. Addi is on her way to school, and she loves it. In fact, when you pick her up, she tries to hide so she will not have to leave. She is such a good girl.

I really want to thank everyone again for all the prayers and support during all of this. I can not ever thank you enough. I truly feel that these two things have been instrumental in my health.

Don't forget to check out www.addiscure.org from time to time....

Today was a big day in the Johnson House. Addison Morgan Johnson started school. Mommy was certainly sad, but our little girl made us proud. She marched right in there and didn't look back. Sad for Mommy. She loved it so much she hid from me when it was time to leave. I promised we were going back tomorrow and that seemed to help. Look out world, here comes Addi!

As promised some pictures of Addi performing Gymnastics...sort of.

Happy Labor Day to everyone. We have really taken it easy this weekend, not doing too much. On Friday we got Christi a new car, then Saturday night we had Jim and Jamie over, on Sunday we went to Phil and Lena's house, and today we went out on the boat for a little while. Wait a minute, we were really busy again....

I have to say I am bummed. I would be playing golf over in Scotland now had I not had the problems I have been through lately. While I am not stressing over it, the day i was supposed to play St. Andrews I did think a lot about it. Justin J. Sent me a rain suit for the trip, so I have been looking at the suit and really wishing I was there with those guys.

Ok - I know everyone has heard already, but App State beat Michigan and I am PUMPED. I did my undergrad at App and was so excited. I did watch the game and was so into it. I watched it over at my sister Tracia's house since she has the Big 10 Network. Awesome. Anyone from MI has my sympathies...

Please keep Kate in your prayers, she had a backwards step in her treatment for lung cancer. She is up at UNC trying to figure out what to do next..... I am thinking about her. Also Jay has had a very bad week, keep him in your prayers as well....

Hope everyone has a great holiday weekend......

Hello - Christi - Things here are finally slowing down a little. thankfully. Bo and I went to Duke on Wednesday to check and see how the procedure is doing and everything is looking good. He is still really sore and the talc powder, glue, they put in his lung still irritates him to where he coughs some, but this lung is still up. Yeah. He also got to do his chemotherapy, Avastin, which was huge for Bo. This has been what kept things stable with the Tarceva. So we are more comfortable with him on it.
On another note, Addi starts gymnastics today with her friend Patterson. We are so excited, do not worry I am sure there will be a million pictures taken and a few posted out here. So we are off to try some flips.
Take care
Christi

Got Ice cream...for some reason our daughter loves her cowgirl hat!

Hello. This is Bo for the first time in awhile. Christi and Tracia have been doing a wonderful job keeping you informed, and I thank them both for that.

What can I say about staying in a hospital? First, it was not fun. While the nurses on 9300 were awesome and made it very pleasant, overall, I am not a fan. I do want to make sure I say hello to the nurses up thee, because without them, I would have been lost. I can not tell you what all they did to me because they had me drugged up, but I must say, it was pleasant. There are too many to name and I am afraid I would forget one any way. I will tell you guys out there, there is a hot one (super smart too!) that is 25 and single.... I will not say here name, but I hope she gets someone good. I can say good things about all of them. I do have to say one tried hard to mask a northern accent, and I did have an international friend up there.... I had a few visitors, and I appreciate them coming. Nick, Steve, Trace, Lauren, Kristen, Carline, Mom, Bill, and Christi/Addi of course. If I forgot someone, please let me know!

I am very grateful to be out.

My Uncle Terry in Kansas sent the following and I thought it was important:



In reference to organ transplants, one thing you might consider is asking your blog readers to think about signing up as organ donors. I've been signed up as an organ donor for over 30 years.
Information on becoming an organ donor is available at:
http://www.organdonor.gov/
Also, there are approximately 100,000 individuals in the United States that are currently in urgent need of organ donations. This is a matter of life and death for them.
Each state has a website that has information on how someone can become a donor. The following are websites for North Carolina and Kansas as
examples:
http://www.donatelifenc.org/
http://www.mwob.org/
There is no greater gift of life, than saving a life after our own deaths.

Got Milk????

Even better news! We are all home again! Bo got to come home yesterday. We are back a square one of him trying to build back up to his go-go-go, but we are getting there. I think he had a better stay at the hospital this time, shorter, but we were better prepared on what to expect. Once again we had some fabulous nurses and doctors that kept him well under control and taken care of, I guess now it is my turn, of course with help with family and friends. I do think the nurses had it easier he was tube tided to the bed, so I will have to work on that one.
We are off to have some pancakes, Addi's Saturday morning breakfast and then just rest.
Take care and thank you for all the prayers that brought my husband home to me, again.
Christi and Addi

Good News! Bo's tube is out! Looks like he might go home tomorrow! I can't wait to get him and Addi under one roof again! Yeah!
Christi

Hello - Christi here. We just wanted to let you know that things are going well. Bo is handling the pleuradesis (spelling and don't laugh you doctors and nurses our there) We found out after the fact that this is a quite painful procedure, but he is hanging in there. They said the more pain the better. It means his lung is sticking, so bring on the pain. Addi and I spent most of yesterday with Bo. And surprise, surprise she didn't take a nap at all. She was way to excited to see daddy to do something as silly as nap. You mom's out there can imagine my day. I think Bo actually sympathized with me, because he might of needed the rest more than anyone. Don't worry I took her out of the room for a while and we played throughout the hospital, now everyone knows Addi. (especially floor 5 with the fish tank) It goes to show that Addi wants her Daddy home like yesterday (which is very much her father's trait)
They clamped Bo's tube today which hopefully means it will come out in 24 hours. Then we just wait for a chest x-ray, Avastin (chemo) and he can go home. Sounds simple when I put it like that. We will just wait and see.
Addi and I are planning a visit tomorrow, but Addi's friend Kristen (babysitter at UNC) will hopefully take her for most of the day and go swimming. Then hopefully Bo will be out before we know it. Not to soon though, we want to make sure that lung stays up this time.
On another note, please send special prayers out to our friends, Jay, Micah and Gracie. Their little girl, Gabi -7 months old, passed away on Monday. She had heart complications and God just had a bigger and better plan for her. But right now her parents need some special loving and Gracie, the older sister needs some hugs her way. Please know that if we can do anything for you, we are here.
Love to all
Christi and Addi

Hello everyone...sorry something is going on with the blog and some posts are not posting. I am truly sorry for that. For those that do not know, we had a minor setback this week. The story goes like this, Friday Bo felt like he had the "gurgling" in his chest again, which previously has been a sign of a collapsed lung. So he went to the hospital with Bill and had a Chest X-ray, and needless to say they wanted to admit him right then and there and put another tube in. Remember he just had that out on Monday night and was home Tuesday. So he talked with his doctor from Duke and they recommended him to come up for his appointment on Monday and they would look at the scans and determine what method they thought best. ((They did say to do this only if he felt good enough, he felt fine) in hopes that what the Charlotte doctors were seeing was the part of his lung that never fully inflated.)
Bo and I went to Duke on Monday, to have him admitted back into the hospital for a collapsed lung. It collapsed to where it was before. This time only air and hopes that it would come up faster since is was down for a shorter amount of time. The tube went in Monday around noon and Bo took it like a trooper now with 2 holes in his side. This afternoon they did the procedure with the talc powder that works like glue and will glue that will keep that part of his lung attached to the lung cavity. (this is a typical procedure for someone that keeps having a collapsed lung) Unfortunately this is painful for a couple of weeks. The doctors say the pain is good, we know that it is attaching, but poor Bo.
So That is where we stand right now. At first we were extremely disappointed to be back in the hospital, but Bo is doing better handling it. It helps that we have some of the same great nurses we had before. Plus we keep meeting more and more great people. School as also started so some wonderful friends that go to UNC and State have been stopping in to help pass the time.
I will try to do better on posting Bo's updates, it is complicated when I stay with him at the hospital, but we will keep you posted. For those asking, Bo is located at Duke Hospital, 2301 Erwin Road, Durham, NC 27710 9th floor.
Love to All
Christi and Addi

The Johnson clan is a little busy today so they enlisted the Big Sister's help to update everyone with Bo's latest news......

Late Friday night, Bo decided that he wanted to have an X-ray of his lung because he felt like it might have collapsed again. So, he went to Presbyterian Hospital at Exit 23 that night to have the X-ray done. After the doctors at Presbyterian Hospital consulted with Bo's primary physician at Duke, they decided that although there was some evidence that the lung had partially collapsed, Bo should hold off on doing anything until he went to Duke on Monday (a pre-scheduled visit for Avastin).

This morning, after meeting with Dr.Crawford, it was determined that Bo's lung had collapsed again. The same weakened spot in his lung had not strengthen as they had hoped. He has been admitted in the hospital and around lunchtime, a tube was inserted into the lung lining to aid in re-inflating the lung. Later this afternoon, the doctors are meeting with Bo to schedule a procedure in which they will insert a special type of glue that will help to strengthen the lung lining to help prevent a collaspe in the future. It is my understanding from Christi that this a typical procedure for a second collaspe of the lung, and the main side effect of this procedure is that the glue decreases the elasticity of the lung.

Bo will remain in the hospital until the lung re-inflates. While there is not a good way of predicting how long this will take, but Bo is saying that he is coming home Thursday no matter what. Of course, his release date is up to his doctors. (Nice try, Bo!) We will try to keep the blog updated with the most recent updates as we receive them. All prayers and well wishes are appreciated!

Tracia

Hello Everyone, Christi still...sorry hopefully soon we can Bo to do some typing. But I have really great news, Bo is home! We are so excited! He is moving a little slow and very tentative with his breathing, but at home. I cannot tell you how happy I am to have the two people I love most in the world under one roof. We are going to have to try and get Mr. Johnson to slow down so no more visits to Duke. Although we did meet some really wonderful people that make living and fighting more important than ever.
Bo left the hospital with his lung healed up, but after lying in bed for 7 days and only getting up to use the restroom, he is a little tired and winded with everything he does. I think a couple of days chasing Miss Addi around might help.
I just wanted to let everyone know that things are on the mend. I think the collapsed lung was a wake up call to all of us that the fight is still going strong. Bo is a little mentally tired right now and mad at cancer, but I know he will get through this. If anyone has any great words of encouragement and inspiration, please send them his way.
Love
Christi and Addi

Hello everyone, Christi again. Hopefully tomorrow we can get Bo back online. Unfortunately he is still in the hospital and will probably be there through half of next week. Bo's lung is expanding back fairly well, there is just a little part that cannot seem to heal up. But there really is no time frame for this and no matter what, nothing would fit Bo's time frame. (he is ready to go now, but knows he should do want is best for his body) The doctor's decided to leave the tube in over the weekend to give his body more time to self heal. Dr. Crawford is going to speak with the thoracic surgeons on Monday for the best course of action. We really have three options, keep waiting (ugh), perform a procedure that will essentially, in crude terms, glue his lung to the lining, or pray his body heals itself. Either option they are looking to make sure this will not happen many more times. Bo is in good spirits, still a lot of pain so he using a lot of their pain medicine. So if you call be aware of the slurred speech due to the medicine. But his is starting to go stir crazy so please shoot him and email or phone call to help pass the time. They will hopefully know something Monday, perform whatever they are going to due by Tuesday so he can be home net Thursday or Friday. Those are hopefully the latest dates out there. Everything is so much up in the air depending on what his body does.
I do have to say thank you to everyone that has sent their well wishes and helped out with Addi. A huge THANK YOU to Sarah and Sue (Joy and Barb) and all the nurses at Duke. They are incredible for their work and for the time they spend talking with Bo. As you all know him he likes to talk and has told them his life story and they have nicely shared most of theirs. We do not have one complaint about the staff at Duke, Bo just isn't loving the food.
take care everyone and I will update more later and like I mentioned hopefully Bo will be online late tomorrow. (I got him a wireless Internet card)
Christi and Addi
Sorry for the typos I missed. A little tired here.

I just wanted to post a quick update. Bo is doing better. Unfortunately Bo has both air and fluid where his lung collapsed, not that that is any worse or better, just more complicated to remove. But it is starting to come out, of course not fast enough for Bo, but coming out. He is doing better with his pain medicine is able to rest more comfortably. So now we just wait for it to come out and if you ask me I am thinking they are trying to get all the hot air out of him which could be hopeless. Just kidding
I do have to say that whenever I talk to the nurses station, whomever it may be, they always seem to know him on a first name basis. I am not sure if that is good or bad, but he does seem to be a hit up there.
Anyway, Addi and I are off to spend the day with him. We will try and write more when we get back.
Thanks for all the well wishes and prayers. They are working!
Christi and Addi

Hello everyone, Christi here. Sorry this is the first chance I have had to post on our results from yesterday. Yesterday was interesting to say the least, we certainly had mixed feelings. Bo was anxious for a reason. We found out he has another collapsed lung, but this time more severe than last and he has been admitted into the hospital with a tube put into his side to help inflate his lung again. This is in the same area it was previously, so we are going to try and figure out if this will be reoccurring or what is causing this to happen. On the other side, from the inflated lung it appears that the cancer is stable still. So great news, but it is hard to tell because his lung other lung is partially collapsed. He is in good spirits, a little drugged up - actually a lot. But the nurses insist that having a tube in your side is extremely painful with all the nerve endings protecting those vital organs, so he isn't just enjoying life. They think he might have to stay throughout the weekend depending on how fast his body heals itself. The longer the lung with deflated, the longer it takes to inflate. I do have to say the doctors were shocked that Bo was walking around and golfing with his lung like this, but we all know he is a stud. I will certainly pass his well wishes along and please keep praying for a full and quick recovery.
Take care and I will post more later
Christi and Addi

I just wanted to send a little request out. Bo and I are a little anxious this month about scans, no reason in particular, other than we are trying to figure out how to live with cancer. So when you are praying tonight, will you send a little extra to help calm our nerves. Bo's got high blood pressure anyway because of some medicines, so we need a little Zin from everyone.
Thanks and we will post as soon as possible the scan results.
Love
Christi and Addi

Hello Everyone, that is still out there...with today's blog I must make a warning. Too much information about Christi, via Addi's dressing up. Kids do the funniest things and needless to say Addi found herself a new hat. Unfortunately that isn't a beret on her head, but Mommy's (new) underwear. We have been talking about potty training and well I guess she wants to wear big girl panties. Hehehehe I am funny today.

Also I wanted to mention the dress is for Papa in Kansas. It reminded us of his denim shirts he wears to work in the winter time. I was funny as a kid also and teased him about what he would wear to work each morning and ask him "Denim".

Anyway, things here have been alright. Bo got the ol stomach bug that has been going around and so he was down and out for a couple days (Sunday until today) but he is feeling better. I thought Addi might have something, but I am beginning to think more and more it is hear 2 year molars coming in. She had one break through months ago, but I believe the others are one their way. I shouldn't complain because I had it easy with everything except molars so far.

Addi and I wanted to thank everyone for the wonderful event and time in Kansas. We had such a great time, raised a bunch of money, Addi got to ride a horse, and I got to hear how country I am sounding. I am currently enrolled in speech classes her thanks to the interview from Channel 6.

Nothing else new really to report other than I did some shopping (not in New York) and I bought some underwear. I warned you to much info.Take care everyone and for those not feeling well get better, Cyndi.

Love

Christi and Addi

Just wanted to update everyone. Addi and I are sick. We have been sick since Sunday. Addi is running a fever, and I was, but with other complications. Whenever I get sick I get scared a little. I had a friend named Daneen who got sick on a Thursday, found out she had lung cancer that weekend, and then died by the next weekend. This is why it scares me so much.

I also wanted to thank the people of Lawrence again. We had a great event there, and I know we did so well in raising money. Christi and I are thinking of away to make sure we show our appreciation. I hope this will be an annual event....

It has been awhile since I posted, and a lot has happened. I had a guys weekend in Pinehurst, an Addi's Cure event in Lawrence, and I have been to SEVERAL cities along the way.

First - The 5 B's Classic in Pinehurst. This is an annual event I have been to for the past 10 years. Several of my frat brothers got together at Brian Williams' dad beach place and it has grown into a major event. If you are the individual winner, not only do you get some $$b you get the pink jacket and the silver cup. I have never won this event, and I was really hoping to do well. You guessed it, bad the first day and really out of the tournament. The good news is I went 2-1 on the ryder cup part. Brian Williams did win this year, and I was happy for him. However, next year will have to be my year.

I got back yesterday from Lawrence and the Addi's Cure event. I went out to Lawrence on Saturday and played golf on Sunday with Chris Dodds, Curtis Morgan, Justin J, Phil Frost, and of course me. We played Lawrence Country Club, good track, needs 1 more year since they just redid the whole course. It was really in pretty good shape considering. On Monday night, we had an event at 23rd Street Brewery. It was packed and a lot of fun. There was a silent auction, etc. There were many volunteers, and I know I will miss some, but here is a good try: Jen and Bill Newton, Mel, Erin, Crystal, Bev, Red Dog, Mom (Terri Morgan), Randy and Catherine Glidewell and Cyndi, Ami and Caitlin. Each person was really important in getting this thing going. Crystal, Christi's sister, had the idea and boy did everyone pull it off. If I missed someone, please let me know so I can post them.

As far as my health, I am still doing fine. I am a little worried of course, my next scans are August 7th. Again, the goal is 5 years. That means I have to stick around until June 1, 2011. Thanks to everyone who keeps me on track.

There have been several new articles and interviews if you would like to watch them. Go to addiscure.org and look on the left hand side. There are some really good ones from Lawrence. The young lady at channel 6 did an outstanding job.

Please say an extra prayer for the Acker family this week as well. Little Gabby is doing great, she is having to be let down slowly off some very hard drugs she had to have when they fixed her heart. She got addicted to them, so it is a difficult process. Please take time to pray for them.

I will write more soon. I hope Christi will post some new pictures of Addi as well.

Hello Everyone (Christi) So I beat a week by one day. For those out there sorry about that. Things here have been a typical summer. Addi just finished up with her swim lessons this week. She loves the water, but was a little mad at the teacher. (The first day she fell off the steps and went under water. I do have to say she did well. She held her breath and tried to swim, but needless to day she was a little mad and untrusting of the teacher) But by the end they would play, swim and blow bubbles together.
This weekend is Bo's annual golf tournament with the boys in the Pinehurst location. (I was corrected that they are not playing Pinehurst, just in the area) So he will be off to that and enjoying some male bonding time. Scary thought. So Addi and I will be hanging with the other husband less wives, probably talking smack about how they left us with the kids and we need to pay them back with the trip to New York, shopping.
Anyway things here are good.
Bo did have a question about his diet. He is still maintaining eating healthy. Each morning he has a shake, smoothie and for dinner we eat a lot of fish and organic veggies. If you live in the Cornelius/Huntersville area there is a great company, Absolute Organics, that once a week delivers a box full of organic veggies and fruits. They change up each week, so it is nice to eat different foods. It is a little hard to maintain the diet when sauces are pretty much out of the question. We grill a lot of foods. I stay away from sauces that have high fructose corn syrup, which is about anything that tastes good. (I guess if you pour the sugar in anything because sweet and good) So that limits us some. I still believe staying away from sugars is important. So I am working on my natural spices, we have learned we are not huge rosemary fans :( There is limit to how much you can add.
Enough rambling about food, thank goodness Bo doesn't post what I cook anymore. I was feeling a lot of pressure.
Take care everyone and see you soon
Christi

I have a question, what medicines are you taking now and what are the side effects and how well do you think they are working??

Right now I am taking Tarceva and Avastin. Tarceva is a pill I take every day. Avastin is a drug I take every three weeks intravenously. Both are targeted therapy drugs, which means they go directly to the cancer and work on it there....

I know I have not posted for awhile, so I wanted to get back into the swing of things. I was really sick with a cold at the beginning of the week, but I am better now. I played 18 on Friday afternoon with Aviva, and then went to a tourn on Sat but I only played 9. Felt a little week, so I decided to just finish the 9 and go home. Sunday we all went out on the boat and had a great time. We will do the same on the 4th as well.

I am very excited about going to several places this fall. Christi and I are going to go to Greece and I also am going to go to Scotland to play golf. We are very lucky to travel like we do.

I wish everyone could spend some quality time with Addi. She is becoming quite the young woman. She slept last night in her big girl bed, and she is so excited. She is taking swimming lessons and she loves boating. I went ahead and got Panther tickets this year so she is going to be my little Panther fan...... She is really awesome. Christi will put so new pictures up soon.

Doesn't anyone have any questions????? Send them to me.

I have made it back from the worst cold I have ever had! It has been a process, that is for sure. Christi and I had a lot of fun at the beach with our friends and family. I got a cold the last night, and I have just felt better today. I did go to Duke on Monday for treatment, but other than that, I have been in bed.

More later!

Hello Everyone! (Christi here) Sorry we have been gone for so long...we are out there just living life! The beach was great. Addi isn't a huge fan of sand (she got wiped out by a wave one of the times we were in Hawaii) but she loved the seashells. We have extra if anyone needs some. She also loved having her family and friends close by. She woke up (after hollaring for Daddy) saying Peyton, Patterson, Lena, Phil and then proceeded to say the rest of the family...even Uncle Mikey. We had a nice relaxing weekend, Bo did catch a cold at the end, so we are trying to get him to rest (Which is like try to get Addi to sit down, impossible)

I do have to mention JULY 23rd...please mark your calendars if you are going to be in the L.A. area (Lawrence Area) at that time. My family and friends are putting on an Addi's Cure event at 23rd Street Brewery in Lawerence...at 3512 Clinton Parkway...please come. The restaurant is giving a percentage of all dinner tickets back to Addi's Cure. We are working on a other items, hopefully, but more importantly I would love to see everyone in Kansas. (if anyone wants to help or knows a company that would love to help sponsor, just email me at info@addiscure.org)

Talk with everyone soon!

Christi and Addi

It has been awhile since the last post, so I wanted to make sure I let everyone know I am doing great. Christi and Addi have been at the beach this week, so I am home alone. I have worked a lot and gone out on the lake on the boat. I think the dogs and I miss Addi and Christi a lot.

Brian William, one of my closest friends, just decided to come to work with us. I am very excited.....

Today I want to dedicate the blog to Kaitlyn and Madelyn Lloyd. These young ladies are very special and have done a very nice thing. They live in Chapel Hill and are the nieces of Phil and Lena. They decided that they wanted to do something for Addi's Cure, so they started raising money. Remember, these girls are 11 and 5. They each got a jar and off they went. You can see the jars in the picture. They raised over $100.00 for Addi's Cure. I just thought they should be recognized for standing out. Thanks Girls! You get a boat ride soon!

I hope everyone is doing well. I also wanted to announce the birth of Mia Regan Bradley to my buddy Lee. He is really going to see what he has been kidding me about!

I also did get a copy of the news report on TV they did on lung cancer that had Christi, Addi, and me in it. We are putting it on the web now, so look soon. http://www.addiscure.org/ is the website....

Don't forget the MILLION dollar challenge: http://www.addiscure.org/

I hope everyone is well today. I wanted to tell you about the weekend I had here in Cornelius. Steve, a buddy of mine, came in Thursday morning for my member guest tournament at The Peninsula. We played an 18 hole practice round on Thursday afternoon, then went to a banquet. The real deal started Friday morning. We had nine hole matches against people in our flight which was called Pinehurst. There were eight flights. Steve was the A player at a 6 handicap, I was the B player at a 14 handicap. It was A vs. A., B vs. B., and then a team best ball net. Each was worth a point for the match, so if you won all three, you got three points. On Friday, we had three 9 hole matches, and we got 7 points. On Saturday, we had 2 nine hole matches and got 3.5 for a two day total of 10.5. We tied for first in our flight, but we did beat the other team 2 points to one point in our head to head match so we won the flight.

We made it to the "king of the hill" shootout for the overall winner. Out of forty-eight teams, there were 8 left for this shootout. Basically, we had two groups of four teams. Each started on a hole and no matter what, one team had to drop out after each hole. If everyone tied, you had to do a chip off. In this chip off, it was closest to the flag for the winner. However, the other team s could not watch each chip to make you go for the flag. I am sorry to report that Steve and I were out on hole one! What can I say, it was high humidity and 95 degrees both days, I guess we were tired! :)

All this was made possible by MY WONDERFUL, AMAZING wife who let me do all of this. She even fixed us breakfast each day.

Because we did go so far, I had to miss Jim Cooper's wedding. I was really mad, but I did not have a choice. Christi went, and she said it was fun. One thing that was good; Addi and I had all night to play together. We went to the park in her wagon, hit the swings, played with the dogs, and had a really good time. It was a lot of daddy and daughter time.

I also wanted to make sure I said something about Nicole McClure Milano. She wrote in the comments on my last post. I do remember her well. She was a very pretty young lady from back in my Hendersonville days. I am glad that I said something to help in a positive way. I always knew she would turn out great. No doubt in my mind. She was a little like me in the fact she had to find her way and she took her time as well.

I am now really wrestling with what to do for my cancer. I feel like I have three options:

1. stay the course with the treatment I am getting, knowing it could last for three months or maybe forever.

2. decide to really push for the double lung transplant. This has no really good data on it for effectiveness, and it would be great if my body just accepted the lungs. Cancer could come back, but I would be starting fresh.

3. Push for Duke to take out a big chunk of tissue from my lungs and allow a brilliant Dr. Potti to try to make a match from my genetic makeup to the medicines I would be taking.

I feel that I need to do something very strong. The bottom line is that I am dieing slowly and the doctors do not have a cure. I am sure I would like the research done on me to heal me, but if not, I also want to make sure that others can be helped from the data I give. It is very tough.

LAST BUT NOT LEAST - Steve's son Marshall is going to Vanderbilt this fall as a freshman. He really wanted to get a good start on experience in business, so he decided that he needed to get some sales experience. He is selling Cutco knives. They are SUPER knives. If you need some, PLEASE email me and I will get you in touch. Throw the kid a bone......

Hello to all. I am sitting at Duke waiting to get my dose of avastin. I just met with the doctors and they reviewed my scans with me. Everything remains stable, and I will have more scans in 9 weeks. Until then, I will continue to get avastin treatments at Duke every 3 weeks. It was really good news.

I also talked to them about a double lung transplant. I decided at this time to stick with what has me stable but to revisit if something changes. I think another option at that time will be genomics, which is basically Duke getting a better sample of the cancer (surgery) and really looking at my specific tumor and build a treatment plan on my tumor. Dr. Potti here at Duke is really a leading guy for this type of research. Google him! He is a super nice guy as well. The lung transplant continues to be on my mind....

I am very proud of everyone that has been sticking by me. It is hard on me, but hard on all of you as well. I will keep it up so you have to as well....

http://www.addiscure.org/


I would like to dedicate the blog today to Uncle Terry from Kansas. He has done tireless research and has really given me lifts. He has also inspired me to ask everyone on this blog to raise $1,000,000 for Addi's Cure. He said I have to ASK FOR IT. Well I am doing this now. Below is a way that some people might help, if not for you, ask 10 firends for a small donation and then send it in. Make sure they know about the website. I always read all of the comments on the blog and try to answer them in my post. I appreciate all of the feedback and well wishes Here is one of the comments:

Bo -A friend of yours, Sharen King, told me your story. I am also a non-smoker and a survivor (so far) of BAC. As I learned about my illness and went through the process of trying to learn how to deal with it emotionally, functionally, and to make life as normal as possible again, I found little in the way of support organizations. Everyone assumed if you had lung cancer, it was your own fault - just stop smoking. And everyone also assumed it to be an automatic death sentence. I would love to help in anything you're doing to help support those with new diagnoses. I am also troubled by the fact that research into lung cancer suffers from the same preconceived ideas.Bo, I'm looking for ways to turn my experience with lung cancer into something to support others, so they don't have to deal with it at all, or at least in a more supportive manner. Let me know what I can do.Marge Combe

I would love to chat with you Marge. Get Sharen to give you my email address and phone number, and call me. I think you have your hands full as well as I do, however, I would love for you to help promote Addi's Cure in your area. This is a way anyone can help. Any money raised would be awesome, and of course awareness is a big key too. I also am almost always asked if I smoked..... The first thing we did was to have a dinner. We went to a local restaurant, and they agreed to have a special menu for us as well as a special price. We then sold tickets that were over the cost of the dinner by $25.00. Each participant got a letter from Addi's Cure giving them tax deductible credit for the $25.00 over the goods and services. It was a lot of fun, a night to hang out with friends for a good cause. I think we have almost 200. I would love to have several "little" Addi's Cure branches all around helping the cause. Remember - 100% of the money is for cancer research, no admin fees or anything.

I also had a question about the TV coverage. I will let everyone know on the blog when this will be on. It was done by a news channel that does content for all affiliations of NBC, so it could be on in 50 different areas or more. It depends on who picks it up, but the lady hosting it is really popular, so I hope that there are lots of people that get to see it. I am also trying to get a link on the website as well.

Please pray for Suzi, Caine, McKenna, Marge, and everyone else in this world hurting from cancer or something else.

I had a surprise today. A news channel came in from Raleigh to do a story on Addi's Cure and lung cancer. It was NBC and they will send it out to all of their affiliates. I hope we can put it on the website soon. I hope everyone has a great holiday weekend.

June 1 will be one year for me, which is a great accomplishment. I am really grateful for all the support from everyone.

Hello to all and sorry for being gone so long...(I act like you care - Christi here) Turks and Caicos was wonderful, busy but wonderful. Bo did an incredible job working (more like working it) and well Addi might have found heaven here on earth. Not only was there a pool and beach, but their daycare program was Sesame Street. Elmo was everywhere...seriously I am not kidding everywhere. She loved them from a distance, but hugging was off limits. Our daughter has personal space issues. She was quite entertaining when they are dancing on stage. She danced for a solid 20 minutes. (so much dancing a woman came up to me and said she should go to LSU, it is a great party school. Whatever, GO KU!)

On another note, I would like to ask everyone to pray for a family friend. He name is Vickie Pettijohn. This past week she was diagnosed with bile duct cancer. This is a tough one to fight, but with everyone's help, I think she will fight. She has a husband, two children and wonderful parents all trying to help her fight. I will forever pray for her and her family.

Switching gears again, can you tell I have been on vacation, I am all over the place (mentally and emotionally) We are all excited to be home for a while. This weekend is huge for us and we are celebrating. Not only is it Memorial Day Weekend a long weekend, but Bo has his 1 Year Anniversary. Do you all think a cake and a card would be too much? Anyway, it is crazy to look back, forward we will go. Thank you everyone for thinking of him and helping us through this tough year.

Love you all

Christi and Addi

Just a quick hello from Bo. I had treatment on Monday at Duke. The last week was really crazy. I was in PHX for a meeting, and then had to fly to Kansas for a funeral for Christi's grandmother. It was tough, Grandma Sparks was very sweet. Christi had a tough time as well.

Got back on Monday and learned that Christi's sister, Cyrstal, had bad news. Her father in law died of lung cancer. He learned of it several weeks ago, but it was really late in the game. This made me really sad for them of course, but also scared a little. I realize I am really luck that I am still here. Please say a prayer for Clinton and Grandma Sparks.

Tuesday Christi, Addi, and I had to leave for Turks and Caicos. This is my company's annual trip. We have 140 people down here for the rest of the week. It should be a lot of fun.

Please do not forget to support Addi's Cure in 2007. Everyone did so well in 2006. We have several events coming up, I am excited. We need to keep the momentum. If you want to help, tell your friends about Addi's Cure and see if they would want to help.

I really feel honored that you all read this. I hope I can write it for a long time to come....

Hello to all...(Christi) I just wanted to thank everyone that has called and sent emails. For those that do not know, my Wonderful Grandmother passed away on Monday. She was and forever will be the most amazing woman I have and will ever know. She had this amazing ability to make you feel like you were the most important person to her. She laughed at everything you said, even if you weren't that funny. (She is on Bo's list of people that think he is funny, he's not) She could tell you the best stories about her life growing up and the adversities she faced during the Depression and during her life growing up as a farmer. But most importantly every time she held your hand you always got a squeeze. I will miss her so much, but I know she loved me and I love her more than anything.

We will talk to you soon.

Christi

Hello to all! Well Addi and I (Christi) had our first visit to Tweetsie Railroad in Boone/

Blowing Rock, NC this weekend. We went up there with Papa and Grams Cain and Cousin Joe and Aunt Andrea and Uncle Daniel. I do have to say my daughter is fearless. She rode everything that she could, of course with her Daddy beside her. Anything that resembled a horse had to be touched if not sat on. She even had a good time riding the train. The weather wasn't really cooperating with us (it rained most of the time), but it was nothing compared to what the family in Kansas has been dealing with. Please everyone keep in your prayers those people dealing with the tornado devastation. My family in on the eastern side of Kansas, so they have had some strong storms, but nothing has come across their path.

All and All a good weekend here just playing with Dad and Addi. She is becoming a comedian. Anytime anyone laughs she thinks she did it and copies them. She is also very fond of her necklaces Daddy bought her. She wears 6 of them at one time! What a mess...

Take care

Christi and Addi

Hope everyone is doing great. I had to go to Arizona for a meeting last week, and I stayed on Friday and Saturday to play golf. My buddy Steve asked me to play in the member guest at Whisper Rock in Phoenix. I can not even tell you how awesome it was. The weekend is called the Horseshoe. We did pretty well, winning our first match, but then losing our second. The final day we finished two shots out of the money.... We had a caddy named Caveman and I put a picture up of Steve, me, and Caveman. Caveman tried to help me on short wedges, and I did not make him proud. I also put up a picture of me just hanging out, and Steve making a birdie putt. It was a lot of fun eve and I are playing in my clubs member guest in June.

It was a great weekend. I was really happy to get back to see Addi and Christi. They were supposed to come with me, but decided not to at the last minute. They had a fun weekend too. Addi was very happy to see her daddy.

Hello everyone (Christi here- I will make sure to specify every time so there is no confusion, by the way good one anonymous about the heels) Things here are pretty good. I have had a few people call and check about Bo's Duke visit on Monday. Pretty much the same. They checked his vitals talked with him and he did Avastin. Every 9 weeks is when we have scans and find out how the medicine is working. So mark your calendars for June 5th, that will be the next big one. (And for those detailed readers, we did switch the scans from every 6 weeks to 9, hopefully this will help Bo to stay away from the radiation some, typical protocol is every 12)

Bo is busy in meetings all day today and was yesterday so Addi and I are fending for ourselves, we don't even have Dad to call and harass us. Just kidding.

Nothing new to report here, Bo and I did celebrate our 3 year anniversary on Tuesday so that was a nice day for us. It is sometimes weird to think that having the 3 year mark come by is huge celebration in a couples life. But last May really put everything into perspective. We are not really big on celebrating these things, but I am forever grateful to everyone praying out there because I can't imagine my life without Bo and thankfully I don't have to. So for another year I get to forever harass my husband for punching our reader in the eye the night before the wedding and giving him a black eye. Gotta love a man that will do that!

Also I thought I would put a couple of new pics of Addi's new hair, Watch out boys!

PS I do have to say that it is a blessing to have nothing new to report, for this minute while I am typing I feel like life is ordinary. I am not quite sure if this is a good thing or bad, but just nice.

Christi and Addi

Watch out Hollywood!

Do you think the paparazzi will know who is this star?

I am on my way to Duke for treatment tomorrow. This weekend was a lot of fun. My club had it's Member-Member this weekend, and I played in it with Phil. We had a blast and won our flight, and finished tied for 4th overall. Phil really played well.

This is going to be a great week at work.

Check out Addi's Cure, there have been several articles on Addi's Cure. Also please view this one from App State.... www.alumni.appstate.edu/blog

I thought this picture was to cute not to forward on...How in the world does my daughter walk in heels better than I do?

Thanks Lena!

Hope all is well today. I was really busy yesterday, and Christi picked up the slack. I am back into the swing of things here at FIG. I had a great time this weekend with my little girl and wife. We spent a lot of time just hanging out.

I am very excited about the warm weather coming, leaving, and now back again. Addi loves to go outside, and last night Christi went to a meeting for Addi's Cure, and me and the pumpkin went to the park and played. Addi loves to swing and go down slides. We had a lot of fun.

I feel like I always leave people out that give to Addi's Cure, so here is the list for 2007:


Old Mutual
Shawn Lee (in behalf of Bill and Jo Cain)
David Nyberg
Donald Urban
Katie Williams
David Weidinger
Jason Klingel
David Vornwald
Stephanie Temple
Jay Robinson
Steve and Tara Neperud
Debra Parks
Jim and Dottie Anderson
Ann Arbor Annuity Exchange
James Lober
Bob and Rebecca Axelrod
Samantha Schleder
Mary & Doug Delaney
TJ & Verna Whalen
Lucian & Jo-Ann Guthrie
Terry Morgan
James & Molly Einstein
Jim and Lib Johnson
Adam Gates, M.D. & Blake Campbell Ravin
Laurie and Timothy Arant
Wayne and Jennifer Ceely
Amerus Annuity Group (Aviva)
Mark and Lisa Heitz
Kestler Financial Group
Juan Butler
Kathryn Brenny
Terri Mayhew
Yvonne Bess
Brian Peterson
Sabrina Smith
Mike Rodgers
Ruth Hahn
Kevin Sullivan
Jim Surrane
Philip & Rachel Goodgame
Elizabeth Wilhelm
Krystal Miller
Devon Millard
Eric & Carolyn Thomes
Mary Ann Bryan
Bruce & Janet Mullan
Kevin & Carolyn Atkins
Isaiah and Nikki Smith
Mike & Caroline Mullan
Charles & Julie Scheper
Bentz & Associates, P.A.
Jerry & Jackie Shoaf
Mitch Barnett
Jeremy Webb
Elizabeth Brooks

I also wanted to say that this list is not up to date. I know that Cody and his wife gave recently as did my MSM Class. Addi's Cure website is usually more up to date than I am, so check there often. Thanks!

Hello Everyone - Christi here. Well we survived the week with Dad out of town, barely. Unfortunately we were suppose to good to some good friends of ours for a baby shower and golf for Bo, but Addi must have been so excited to see Dad that she threw up. Now that is love...we stayed home to make sure she didn't have the stomach bug going around, but it appears it was a one time thing. So we got a weekend with Dad with nothing to do...it was great. We are so proud of him and his accomplishments. We did miss seeing Grand-Daddy and Great Papa, but hopefully we will get up there real soon, they will be so surprised with how big their Little Addi is getting.
We hope that everyone is feeling alright and hopefully we can see you all soon.
Christi and Addi

Just a quick post today, I am done. I just presented my final paper to my class. Unless something happens, I now have a Masters of Science in Management, with an emphasis on leadership. Sorry to gloat, but it was hard and I am just glad it is over.

I will be excited to get back as well. I am interested in seeing Addi's reaction when I get back!

On the last post, I asked people to leave a comment. As of this morning, 47 people had left something. I wanted to say thank you. I really appreciate it and it helps me look forward to posting things.

I am in PA now finishing up my masters. For the morning, we have been talking about ethics. It has really been interesting. At the end of the week, i have to present my final project, which is Addi's Cure. Everyone has been asking me questions about it, it has really been cool.

One of the comments asked me about if I am still eating right and living a healthy lifestyle. The answer is sort of. I am still doing my best on eating right. Christi has really tried hard to provide great food. Traveling has not been easy. Exercising has been tough to since I am so busy. This question made me decide to really press on with eating and exercising, thanks!

I will keep you up to date this week.....

I would like anyone that reads this to post a comment this time! I would like to set a record!


Went to Duke today for scans and really got great news. The cancer is stable again, and it might have even reduced some. Dr. Crawford said he sees a little reduction, but the Avastin really has not had time to work. I go back for a scan in 9 weeks now instead of every 6 weeks. I am really looking forward to seeing what happens next. Maybe Avastin is the drug for a long time? It would be nice. I still take it intravenously (sp?) every three weeks.





Addi has been so funny lately. She is so grown up and runs everywhere. She is really awesome. I am finishing up my masters on April 13th, so I am happy that I will be able to spend even more time with Addi and Christi. I added a picture of her in her wagon. All she wants to do is run down the backyard and jump into Lake Norman! She really wants to get on the boat!





Wanted to say thanks to my cousin in CA for keeping in touch! Email me sometime!

Hello Everyone! Hope all is well.

This week was really busy, and next week is as well. Mark H., Jordan C., and Justin J. can in the office last week. We do business with a company named Aviva, and they came in just to hang out. They presented a BIG check to Addi's Cure. What was even nicer, is that Mark H. (President) gave a donation from his personal account. Very nice.

I played golf on Friday and today. 88 and 86. I have really been playing better lately. Won money both times, which is always important.

Going to Duke on Monday afternoon and have scans on Tuesday. Big day. We will see if the Avastin is working. I hope so...

Christi and Addi are doing well. Addi feels a lot better and made her Daddy realize he had a bad day the other day, but she will not let it happen again for awhile.... See you soon, and keep going to www.addiscure.org. There is a new article there, and I think there might be a tv spot soon. Some very nice people are also working on an event call Touch A Truck.... Working on it.